My 4 year old was diagnosed earlier this month with ITP when she ended up in the hospital with nosebleeds, bruising, and petechiae with a platelet count below 10 and RBC and WBS counts very low. She had IVIG while in the hospital and her platelets went up to 110 before they released her. Yesterday she had her first appointment with the hematologist and although her RBC count is still low (but going up), her platelets were at 524! We are ecstatic but scared. We have now realized that the "strange red dots" she has had off and on for the past 2 years, the strange bruises that have just popped up, and the small nosebleeds she has had the past 2 years, were quite possibly dips in her platelets. So although she is considered in remission, we were told that she was at risk of possibly relapsing. One of her tests from when she was in the hospital came back positive so they are sending her to a rheumatologist too. I will be honest, I am a bad mama and forgot to write down what it was but I do recall them telling me that if it came back positive, she was at risk of other autoimmune disorders (and ITP coming back after remission) and that my husband most likely has it too (he has 2 autoimmune disorders including AHA).
Anyone have any advice on things we can do to help keep her platelets up?
