Timothy at 30k tonight

Timothy at 30k tonight 13 years 4 months ago #3

lucidawn
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Posts: 335
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I know it is a shortlived IVIg response, but at least we know his bone marrow is functioning. This is good news. It will be interesting to see what the plan will be next. Typically this will only last a week or less.

Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
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Re: Timothy at 30k tonight 13 years 4 months ago #4

Angel85 Offline I am 27 years old from Australia and I have T.A.R Syndrome. My email address is not showing on my profile for some reason so it is blossom_242@hotmail.com for anyone who wants to send me an email. Posts: 522 Thank you received: 13	Good to hear they are at 30, he is at least not in the danger zone at the moment, and good to hear his bone marrow is still finctioning.
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Re:Timothy at 30k tonight 13 years 4 months ago #5

lucidawn
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Posts: 335
Thank you received: 7

Thanks....this forum/site is missing one important detail. Signatures. I can't find any place to set up a signature.

Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...

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Re:Timothy at 30k tonight 13 years 4 months ago #6

dots Offline Posts: 41 Thank you received: 1	Good point about the sigs. We should let them know -- I bet they can add it somehow. Look for a PM either here or at the other forum regarding my username. This is really good news about Tim.
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Re:Timothy at 30k tonight 13 years 4 months ago #7

shelly.k Offline Posts: 17 Thank you received: 0	Happy to hear his count went up. Hopefully, it will continue to climb - about time he caught a break!!
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Re:Timothy at 30k tonight 13 years 4 months ago #8

lucidawn
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Posts: 335
Thank you received: 7

Well, the rise in counts is what he usually gets from IVIg,the second dose, but we don't usually take a cbc after the second dose. It doesn't last more than a few days, though. its only an indication that his bone marrow is 'functioning', but its nt really an indication of remission or that he is on the rise, unfortunately.

Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...

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Re:Timothy at 30k tonight 13 years 4 months ago #9

alisonp Offline Posts: 1052 Thank you received: 119	Its still good news for those of us who watch for posts about Tim though - I thought he would never get into double figures! Hope he is enjoying it while it lasts. Ali
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