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Parents of Children with ITP
General Discussion for Parents
Thoughts on tapering off Promacta
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Thoughts on tapering off Promacta 6 years 8 months ago #57610

  • mmcnatt
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Today Kailey's platelets were 184k. The highest they have been in years. He told my husband that if in 6 weeks if she is still high he will begin tapering her off Promacta. The thought of this concerns me because she had a platelet dropped a while ago while taking Promacta due to being sick.

Has anyone ever had a successful tapering of Promacta?

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Thoughts on tapering off Promacta 6 years 8 months ago #57611

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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How long has she been on Promacta? What dose?

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Thoughts on tapering off Promacta 6 years 8 months ago #57612

  • mmcnatt
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50mg. She started in September 2016.

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Thoughts on tapering off Promacta 6 years 8 months ago #57614

  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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Just off hand, seems like the doc would have reduced her dose to 25 mg and see how that went first.

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Thoughts on tapering off Promacta 6 years 8 months ago #57617

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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You could try it....but make him go slowly.

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Thoughts on tapering off Promacta 6 years 8 months ago #57784

  • EmilyK
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  • Diagnosed jan 2015 at age 50 with 13,000 platelets.
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I tapered off promacta very slowly. I am still staying around 30-50000. Good luck.

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Parents of Children with ITP
General Discussion for Parents
Thoughts on tapering off Promacta
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