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Thoughts on tapering off Promacta

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7 years 8 months ago #57610 by mmcnatt
Thoughts on tapering off Promacta was created by mmcnatt
Today Kailey's platelets were 184k. The highest they have been in years. He told my husband that if in 6 weeks if she is still high he will begin tapering her off Promacta. The thought of this concerns me because she had a platelet dropped a while ago while taking Promacta due to being sick.

Has anyone ever had a successful tapering of Promacta?

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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7 years 8 months ago #57611 by Sandi
Replied by Sandi on topic Thoughts on tapering off Promacta
How long has she been on Promacta? What dose?

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7 years 8 months ago #57612 by mmcnatt
Replied by mmcnatt on topic Thoughts on tapering off Promacta
50mg. She started in September 2016.

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  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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7 years 8 months ago #57614 by Hal9000
Replied by Hal9000 on topic Thoughts on tapering off Promacta
Just off hand, seems like the doc would have reduced her dose to 25 mg and see how that went first.
ITP Types and Treatments by HAL

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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7 years 8 months ago #57617 by Sandi
Replied by Sandi on topic Thoughts on tapering off Promacta
You could try it....but make him go slowly.

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  • EmilyK
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  • Diagnosed jan 2015 at age 50 with 13,000 platelets.
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7 years 7 months ago #57784 by EmilyK
Replied by EmilyK on topic Thoughts on tapering off Promacta
I tapered off promacta very slowly. I am still staying around 30-50000. Good luck.

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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