My 4 y/o son was diagnosed on 9/3/16 with 4000 platelets. We have a good hematologist who I really like and we are in a fairly large city (250,000 population) in an area with a good medical community. But in the month we've been through 3 rounds of IVIG, WinRho, prednisone, and Dexamethasone and his platelets still haven't gone over 14, with the low being 3. He's had minor symptoms (a few petechiae, oozing nosebleeds and mouth blood blisters) but nothing earth-shattering. Our next step is probably Promacta.
I'm just wondering if it's worth getting a second opinion or if this is pretty much all that can be done. It's not like there are thousands of treatments for ITP, so her plan of action seems to be pretty reasonable to me. Would a different doctor recommend something different??
Thank you, the dr we're seeing is a pediatric hematologist but that's an important distinction.
I'm just curious if a different dr would prescribe more/different treatments, or fewer treatments and more watchful waiting since it seems to be so refractory. We have already had a bone marrow biopsy to rule out malignancy.
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