Be a part of the ITP community and stay informed.
Login to your account or REGISTER

•  Web site Help & Info

Welcome, Guest
Username: Password: Remember me
  • Page:
  • 1


Things going well! 7 years 4 months ago #54439

  • TerriC14
  • Offline
  • Posts: 130
  • Thank you received: 33
My daughter continues to do very well on Promacta. As her doses have been decreasing her counts have been going up significantly. She is on 12.5mg currently and her count rose to 300k. She is going to decrease to 3 days a week and if the count stays therapeutic (75 to 100K) she try stopping the medication! Yeah!

The pediatric hematologists, for as much as they have a conservative approach to starting medication therapy are a little slow with decreasing it - she was doing well, feeling well and they did not want the counts bouncing all over. Of course with how much her counts have increased (I think when she first dropped to 12.5 maybe 2.5 months ago the first count was 90k) I am pretty hopeful that it is not a fluke and hopefully she will be able to stop with the medication.

I am also relieved - we really like her doctors. They are Pediatric hematology group but will continue to follow her for at least another year or two. From my experience (which may be limited) adult doctors are more aggressive with medications and I like the more laid back approach. I am oping that by the time that she needs to move on her treatment plan will be established.

Please Log in or Create an account to join the conversation.

Things going well! 7 years 4 months ago #54441

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12436
  • Karma: 11
  • Thank you received: 2375

That is great news and I am so glad that things are going so well!

Please Log in or Create an account to join the conversation.

  • Page:
  • 1
Moderators: jaycharness
Charity Navigator
GuideStar Seal
NORD Member Badge
THSNA logo
THSNA Summit 2024
April 3-6th