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Parents of Children with ITP
General Discussion for Parents
Good news :-)
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Good news :-) 6 years 11 months ago #54150

  • alisonp
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Dougie's count a fortnight ago was an amazing 85! Even he said he couldn't quite believe it :laugh:

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Good news :-) 6 years 11 months ago #54153

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Alison - that's great! Is he still taking the acne med?

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Good news :-) 6 years 11 months ago #54159

  • alisonp
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Yes, we were joking that it should be tested as a new ITP cure - Dougie hasn't had counts anything like that for years ;)

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Good news :-) 6 years 11 months ago #54160

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Is it an antibiotic? Sometimes counts do go up with antibiotics.

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Good news :-) 6 years 11 months ago #54167

  • alisonp
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Its active ingredient is isotretinoin (sp?) which is a vitamin A derivative

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Good news :-) 6 years 11 months ago #54171

  • Rob16
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Accutane (isotretinoin) is known to cause thrombocytopenia, reversibly, by suppressing bone marrow production. However, cases of thrombocytosis (the opposite of thrombocytopenia) have also been reported.

FactMed.com lists the likelihood of thrombocytopenia with Accutane at 1.087%, and thrombocytosis at .047%.

You might want to let Dougie pick some lottery numbers for you!

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Good news :-) 6 years 11 months ago #54177

  • alisonp
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Ha! Yes I should do! :P

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Good news :-) 6 years 8 months ago #55052

  • alisonp
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Just thought I would update. Dougie hasn't had another test recently but he's still looking good so we are assuming adequate platelets. Today he ran his first ever half marathon - came in just under two hours. ITP does not necessarily have to change your dreams :-)

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Good news :-) 6 years 8 months ago #55054

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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That's great, Alison! Congrats to Doug! :laugh:

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Parents of Children with ITP
General Discussion for Parents
Good news :-)

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