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Parents of Children with ITP
General Discussion for Parents
IVig home health vs inpatient
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IVig home health vs inpatient 7 years 5 months ago #53869

  • mmcnatt
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So my dd has to have another round of IVig. Last time she was admitted (count was10k) and she had a severe nose bleed.

This am they could admit her to the outpatient unit that does the infusions for various reasons like cancer or ITP. Instead the doctor working the clinic today wants her to have home health do it. I told the nurse that I am in nursing school and this is my only day I am home. My husband has missed a ton of work already. The nurse is hoping the insurance will pay an agency that is able to do infusions to do it in their office, today would be awesome.

Just wondering what other parents have to go thru when it's time for IVig. Home health or Inpatient

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IVig home health vs inpatient 7 years 5 months ago #53872

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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I only remember one person having IVIG at home. That was years ago. I'm not quite sure how I feel about that, so I don't have much to say. You have to do what you are comfortable with.
The following user(s) said Thank You: mmcnatt

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IVig home health vs inpatient 7 years 5 months ago #53873

  • mmcnatt
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Unfortunately it wasn't up to me. The doctor was pretty straight forward with the nurse about not admitting . We are at a home health office that does infusion treatment in office or at the home. It's okay, I guess. She is asleep. And I am trying to study the 100 drugs I have to know by Thursday.
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IVig home health vs inpatient 7 years 5 months ago #53876

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Well, it looks like it is working out well. :)

You sound just like my daughter. She is also in nursing school and has Pharmacology this semester.

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IVig home health vs inpatient 7 years 5 months ago #53878

  • mmcnatt
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Poor thing is bored out of her mind. Still have a couple more hours of treatment. What fun. :blink:

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IVig home health vs inpatient 7 years 5 months ago #53880

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Can she watch TV? At least it's better than the hospital. For both of you!

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IVig home health vs inpatient 7 years 5 months ago #53881

  • mmcnatt
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Yes but she likes to move around and can't do that with an IV. Thankfully, my dad came so she had a visitor as well as Taco Bell. Lol


Fingers crossed we don't have to revisit any time soon

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IVig home health vs inpatient 7 years 5 months ago #53882

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Good luck. I hope her counts respond and stay up!

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IVig home health vs inpatient 7 years 5 months ago #53884

  • mmcnatt
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I sent her to school today. She's tired but felt like going. I wrote a note for No PE. (They already have her on a restricted PE activities due to her platelets) She wasn't happy about that.

I talked to the hemotology nurse this am. I told her the agency treated her like a princess and we had no complaints about them. But did not appreciate the Dr sending her out for treatment when the other doctors have talked about the infusion center at the children's hospital to her. While they did their best at the agency, it just wasn't kid friendly. She understood but she is caught in a hard spot between doctors. I will address the situation with the doctor we see next week. I only want them all to be on the same page. (3 doctors and a Nurse practitioner).

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