Be a part of the ITP community and stay informed.
Login to your account or REGISTER.

•  Web site Help & Info

Welcome, Guest
Username: Password: Remember me
Forgot your password? Forgot your username? Create an account
Forum
Parents of Children with ITP
General Discussion for Parents
In remission - nose bleed question though
  • Page:
  • 1

TOPIC:

In remission - nose bleed question though 8 years 2 weeks ago #47058

  • wormka
  • Offline
  • Posts: 4
  • Thank you received: 0
Good Afternoon,

My daughters platelets have been good (above 100) since December - I just wondered though if anyone noticed that before their child got ill - their nose bled. Everytime she gets sick her nose will bleed for about 3-4 days before. She got sick last week with the flu and she had the nose bleeds and a small rash.

I assume that depending on what her levels are in the weeks before she gets sick will indicate if her levels will drop to concerned areas.... Is this true???? The pediatrician has sent us back to our general practitioner, but he doesn't know alot about ITP. For some reason my mommy radar is indicating we are not done with ITP yet....

Please Log in or Create an account to join the conversation.

In remission - nose bleed question though 8 years 2 weeks ago #47067

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12436
  • Karma: 11
  • Thank you received: 2372
The only way you can know what is going on is to have counts done more often and try to 'catch' a low count when it happens. That is hard to do though if counts have been consistent because you could be subjecting her to too many unnecessary CBC's.

Please Log in or Create an account to join the conversation.

In remission - nose bleed question though 7 years 10 months ago #48417

  • mrsdeputie
  • Offline
  • Posts: 3
  • Thank you received: 0
My daughter has lots of nose bleeds! Usually 2-8 a week. They seem to be completley independent on where her platlets are. She has chronic itp and we've been battling it for over a year now.

I would suggest charting your child's bleeds and how long they last on a calendar. Then you can see patterns (every 4 weeks my daughter has a increase in bleeds, and when she eats gluten it increases the amount of bleeds she has). You can see if they're related to her immune system with sicknesses ect this way too.

Please Log in or Create an account to join the conversation.

In remission - nose bleed question though 7 years 10 months ago #48419

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12436
  • Karma: 11
  • Thank you received: 2372
Sometimes nosebleeds have nothing to do with ITP. My niece had horrible nosebleeds that would gush if she even touched her nose, but did not have ITP. She needed to have her nose cauterized. She was fine after that.

Please Log in or Create an account to join the conversation.

In remission - nose bleed question though 7 years 9 months ago #49170

  • AustinsArmy03
  • Offline
  • Posts: 4
  • Thank you received: 0
My son was placed into remission status last year this month. Not long after being diagnosed with ITP the nosebleeds started. At first they were connected to his counts, if they were low he would bleed. Then as time went on, it stopped being connected. Now that he is in remission he still has nosebleeds. They are unprovoked. They just happen. I don't know if this helped, but this is just what we have experienced.

Please Log in or Create an account to join the conversation.
  • Page:
  • 1
Moderators: jaycharness
Forum
Parents of Children with ITP
General Discussion for Parents
In remission - nose bleed question though

Charity NavigatorGuideStar Seal NORD Member BadgeTHSNA logo