Platelet Disorder Support Association

Join Us:

Become a Member

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info
!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

In remission - nose bleed question though

More
9 years 6 months ago #47058 by wormka
In remission - nose bleed question though was created by wormka
Good Afternoon,

My daughters platelets have been good (above 100) since December - I just wondered though if anyone noticed that before their child got ill - their nose bled. Everytime she gets sick her nose will bleed for about 3-4 days before. She got sick last week with the flu and she had the nose bleeds and a small rash.

I assume that depending on what her levels are in the weeks before she gets sick will indicate if her levels will drop to concerned areas.... Is this true???? The pediatrician has sent us back to our general practitioner, but he doesn't know alot about ITP. For some reason my mommy radar is indicating we are not done with ITP yet....

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
9 years 6 months ago #47067 by Sandi
Replied by Sandi on topic In remission - nose bleed question though
The only way you can know what is going on is to have counts done more often and try to 'catch' a low count when it happens. That is hard to do though if counts have been consistent because you could be subjecting her to too many unnecessary CBC's.

Please Log in or Create an account to join the conversation.

More
9 years 5 months ago #48417 by mrsdeputie
Replied by mrsdeputie on topic In remission - nose bleed question though
My daughter has lots of nose bleeds! Usually 2-8 a week. They seem to be completley independent on where her platlets are. She has chronic itp and we've been battling it for over a year now.

I would suggest charting your child's bleeds and how long they last on a calendar. Then you can see patterns (every 4 weeks my daughter has a increase in bleeds, and when she eats gluten it increases the amount of bleeds she has). You can see if they're related to her immune system with sicknesses ect this way too.

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
9 years 5 months ago #48419 by Sandi
Replied by Sandi on topic In remission - nose bleed question though
Sometimes nosebleeds have nothing to do with ITP. My niece had horrible nosebleeds that would gush if she even touched her nose, but did not have ITP. She needed to have her nose cauterized. She was fine after that.

Please Log in or Create an account to join the conversation.

More
9 years 3 months ago #49170 by AustinsArmy03
Replied by AustinsArmy03 on topic In remission - nose bleed question though
My son was placed into remission status last year this month. Not long after being diagnosed with ITP the nosebleeds started. At first they were connected to his counts, if they were low he would bleed. Then as time went on, it stopped being connected. Now that he is in remission he still has nosebleeds. They are unprovoked. They just happen. I don't know if this helped, but this is just what we have experienced.

Please Log in or Create an account to join the conversation.

Moderators: jaycharness
Platelet Disorder Support Association

Donate

About

Stay Informed

Follow Us

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org


© Copyright 1997 - 2024, Platelet Disorder Support Association. All rights reserved.
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.


Privacy Policy and Terms of Use