Be a part of the ITP community and stay informed.
Login to your account or REGISTER
.

•  Web site Help & Info

Welcome, Guest
Username: Password: Remember me
  • Page:
  • 1

TOPIC:

Splenectomy - Remission 8 years 2 months ago #43663

  • jlollman
  • Offline
  • Posts: 34
  • Thank you received: 1
After dealing with ITP since he was 3, I think we can say over 4yrs later and a splenectomy, he has reached remission! In two weeks, it will be one year since splenectomy and one year with NORMAL counts! We are celebrating and I thought I would share his video since this is also awareness month. This site has been so valuable to us!
Thanks! Julie
youtu.be/3WIxZIYm9Fc
Mom to 7yr old Samuel with Chronic ITP. Diagnosed age 3
The following user(s) said Thank You: Vdeutsch85

Please Log in or Create an account to join the conversation.

Splenectomy - Remission 8 years 2 months ago #43671

  • firkins
  • Offline
  • Posts: 139
  • Thank you received: 18
Mazel Tov! Really hope it lasts. Happy for your son :) :) :)
Firkins (mom of Zoe (15) and Mia (13). Mia has ITP. Diagnosed 3/2012.
The following user(s) said Thank You: jlollman

Please Log in or Create an account to join the conversation.

Splenectomy - Remission 8 years 2 months ago #43680

  • jlollman
  • Offline
  • Posts: 34
  • Thank you received: 1
Thanks! We know it could return at anytime, we are hopeful for any time without it he can get!
Mom to 7yr old Samuel with Chronic ITP. Diagnosed age 3

Please Log in or Create an account to join the conversation.

Splenectomy - Remission 8 years 2 months ago #43683

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12436
  • Karma: 11
  • Thank you received: 2369
Beautiful video! :)
The following user(s) said Thank You: jlollman

Please Log in or Create an account to join the conversation.

Splenectomy - Remission 8 years 2 months ago #43911

  • athos45
  • Offline
  • Posts: 105
  • Thank you received: 1
Very Nice Video. Nice to also share the brother and dad's concern for your ITP son.

And I feel your pain. And joy! One thing that we ITP parents can't deny is that our families are closer together because of our son's condition. Hoping for total remission.
Father of Tonio, 8 yrs old w Chronic ITP

Please Log in or Create an account to join the conversation.

  • Page:
  • 1
Moderators: jaycharness

Charity NavigatorGuideStar Seal NORD Member BadgeTHSNA logo