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ITP 8 years 3 months ago #42986

  • RURU72
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My daughter has ITP she has had it for 1 year and her platelets went up to 90000 now all the sudden we went back today and now they are 20000 what can I do for her.

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ITP 8 years 3 months ago #42994

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Her counts are still in a fairly safe range. What does her doctor suggest?

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ITP 8 years 3 months ago #43050

  • RURU72
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She does not say much they have talked about taking her spleen out but I don't think that's a good option I'm not sure what to do this scares me they haven't done anything since this has been going on

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ITP 8 years 3 months ago #43051

  • RURU72
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She goes back Monday they said if they are under 20000 I will have to take her to the hematologist Tuesday morning IM SCARED I don't know what to think or do

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ITP 8 years 3 months ago #43059

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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First, calm down. Nothing has to be done in haste. 'Watch and wait' is a very valid option for children, in the UK they rarely treat no matter what the count is. If you are not sure what to do, do nothing until you make a decision you are comfortable with.

Splenectomy is NOT the best choice right now, especially since nothing else has been tried. In the meantime, read as much as you can about the treatments. Having that knowledge will help things to fall into place for you.

How old is she?
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ITP 8 years 3 months ago #43063

  • babeflover
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Don't allow the doctor to remove her spleen. My daughter has been at 10,000k(about 6 years ago), and there was not talk of removing her spleen. Take your daughter to a Holistic doctor( these are MD that treat autoimmunity without medications), they are also called integrative alternative doctors. I speak from experience, there is a huge chance your daughter doesn't need those horrible medication the doctor is about to prescribe, neither she needs her spleen to be taken out. My daughter uses NO medications, and her latest count was 201K. Let me also tell you that my daughter has bigger problems that yours, she has been very close to being diagnose with lupus.
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ITP 8 years 3 months ago #43067

  • RURU72
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So do they know why her count is down

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ITP 8 years 3 months ago #43068

  • RURU72
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Thanks Sandi I will let y'all know tomorrow we go back

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ITP 8 years 3 months ago #43069

  • RURU72
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Sandi she is 6 years old

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ITP 8 years 3 months ago #43070

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Six is too young to lose a spleen; that would affect her for the rest of her life. Sounds like you have a doctor who is a bit out-dated. Another opinion might be good in this situation.
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