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Dapsone 8 years 4 months ago #42629

  • Tcammauf
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Anyone have experience or information to share about Dapsone? Last week my daughters count was 2 and her mouth was bleeding often. Our two treatment options were Rituximab or Dapsone. She's been under 20 for the past six weeks and only had a couple of counts above 50 in the past three and a half months since diagnosis. She's 11. IVIG did not work. Steroids did not work. They said she is refractory. She started Dapsone 6 days ago. She looks worse.....still mouth bleeding and much more petechiae. It's showing up in patches. Any thoughts on the drug and should it be at least helping a little by now??? Thank you!

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Dapsone 8 years 4 months ago #42650

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Dapsone will take a while to work, weeks or months. It's not used often and doesn't have a very good track record as far as success, but it does work once in a while.

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