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Top pediatric hemotologist

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9 years 11 months ago #42307 by Noreg9
Top pediatric hemotologist was created by Noreg9
Any suggestions for who the top pediatric hematologist are for treating ITP? I'd like a second opinion. We're southern east coast, but would have no problem flying. Thanks in advance!

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9 years 11 months ago #42310 by Rob16
Replied by Rob16 on topic Top pediatric hemotologist
Cindy E. Neunert, Department of Pediatrics and Cancer Center, Georgia Regents University, Augusta, GA

She is a (former?) bigwig with the American Society of Hemotology, with a special interest in ITP.

Her email is included with this article she wrote:
asheducationbook.hematologylibrary.org/content/2013/1/276.full.pdf
If she cannot help you she can direct you to someone who can.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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9 years 11 months ago #42311 by Sandi
Replied by Sandi on topic Top pediatric hemotologist
vivo.med.cornell.edu/display/cwid-jbussel

pdsa.org/about-us/our-medical-advisors.html

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9 years 11 months ago #42315 by juliannesmom
Replied by juliannesmom on topic Top pediatric hemotologist
My daughter always received great care at MCG (now Georgia Regents) Pediatric Hematology/Oncology, in Augusta, GA. Not sure all the same docs are still there, as daughter is 20 and hasn't needed treatment in several years, but the care was great from all the docs in the practice, the ER when she had a nonstop nosebleed, and the Children's Medical Center for inpatient stays, bone marrow testing, and tooth extractions (in OR due to bleeding risk) for braces. (I didn't know the doctor Rob mentioned, who apparently came there after my daughter ceased treatment. Our docs included Bell, Vega, McDonough, Ameri. I think Bell and Vega have retired.) They answered questions thoroughly and understood our concerns. They treated as needed, but were neither too eager to treat nor too cavalier to low counts and risks. We knew she was in great hands, and, being in a teaching hospital, they were always quick to get other specialties on board when needed. (Dermatology, gyn, rheumatology, ENT, dentistry - it was all there.) I also liked that their system allowed all her docs of different specialties to access one another's records and all her lab records. Can't praise that group enough.
Norma

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