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Sandi wrote: Maria:
The response is: The app being used by the UK Platelet Disorder Association was designed for them by a drug company. They have a deal between the two of them. We can't have that one, but the PDSA is working on an app that may be ready in a few months.
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Will do, Sandi!Sandi wrote: Yay! Give him a high five from me!
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160 count, nice! Looks like he's in that ITP resolves within 6 months group. Do you remember what 'normal' was like?maria3132 wrote: Hi everyone,
I have great news - my son's platelet count is 160,000. Oddly, he has more bruises that look like ITP bruises to me (sides of knees and lower back around the spine and dimples have been his hallmarks) than he did at his last count about a month ago, but we are certainly not complaining! We still haven't taken him in for a flu shot, I'm afraid it might send his counts down, but we might do it near the end of this month.
I'm catching up on the other threads... Hope everyone is doing okay.
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Take a look at the below list which I created from PDSA members who likely had Flu or Flu vaccine as trigger for ITP, as posted here. There are 10 members, numbered 1 through 10. If month of trigger is not known, these were not included.maria3132 wrote: ...
On the flu shot, we'll probably do it; truthfully I'm hoping to wait until late November / early December to see if there's any indication of whether this year's vaccine actually matches the circulating strains. I didn't realize the flu shot is less risky than having the flu. That seems to be a big vote "for" getting one.
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Sandi, just to share a bit. IMHO Flu vaccines should be avoided by every ITP'er, except row 2. The Flu virus being a potential cause of ITP reactivation in that group.Sandi wrote: I'd say it's a coin toss as to which would be more risky. Vaccines are inflammatory which is not good for those with autoimmune disorders...
Have you heard of the 'Way Back Machine'? It keeps a record of web pages over time. If you still have the link you might be able to recover it from the Way Back Machine web site. It does take a bit to figure out how the web site works.... I had a study showing that the flu vaccine is not effective in children, but it appears to have been taken offline...
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