My daughter, T, went into the hospital last week after her 3rd nosebleed in less than 32 hours. Each one lasted 1-2 hours. When she arrived in the ER, her platelets were >10 and her hemo was 7.7 with white blood cells low too. They admitted her for 3 days, did IVIG, switched her seizure medication, took blood for genetic testing (Ordered by the neurologist because of her combination of seizures and developmental delays. She ordered it for while we were still in the hospital so that it wouldn't be a fight for insurance to cover it), and tested for several genetic conditions that could cause ITP and other autoimmune disorders, as my husband has 2 autoimmune disorders including Hemolytic Anemia. After all that, we still don't know what caused T to have this ITP reaction. They assumed it could be from the allergic reaction she had just 2 days before the nosebleeds started (she was bit by something and ended up with full body hives) or her seizure medication but even the neurologist said that the medication she was on wouldn't cause a reaction as bad as her's. Has anyone else had their child be diagnosed with ITP with no idea what lead up to it?
The good thing is that her platelet levels were at 110 when she left but her hemo was only 7.3 (dropped down to 6.4 after the IVIG) and her white blood cells were still low but up from when she came in.