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Scared - Confused

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8 years 3 months ago #52272 by sarae614
Scared - Confused was created by sarae614
Hi All

First a big thank you to Sandi for her great work. PDSA website is of great, I can say only support all the time since I started reading on ITP when my son is diagnosed with ITP 3 weeks back.

Do anyone has any experience of using any alternative medicine? Please let me know.

My son took a live virus mist , and in two weeks his blood count was 1. He is given ivig and in a week his blood test showed, 138k. Worried of the next blood test. Any idea how to increase his platelet count atleast to 20,000 to 30,000.

I had hopes on papaya leaf extract. But it is not working always.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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8 years 3 months ago #52276 by Sandi
Replied by Sandi on topic Scared - Confused
Sara:

Alternative treatments can be hit or miss. They do not always work or can take a very long time to see any results. At that point, you don't know if the treatment caused the rise or if he was going to remit on his own anyway. I have not known of any alternative treatment that works a good percentage of the time.

Try not to worry about the next blood test yet. Does he have any symptoms right now?

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8 years 3 months ago #52279 by sarae614
Replied by sarae614 on topic Scared - Confused
thank you for the reply. Currently , I am daily watching for any symptoms, bruises , bleeding. We have a scheduled blood test next thursday. But its so scary to check him everyday. he complains about itching a lot. Mild red mucous from the nose.

Even I am getting the same understanding, alternative medicine can be a miss too.

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