I want to know if inevitably it is my decision to start any mediciation on my daughter or if it is doctors decision. The reason is that the doctor wants to start rituximab on my daughter. And i don't want to. I feel as is they are pressuring me to start it. She has had ivig, cellcept and prednisolone, which did not do much for her. Her platelets were 10, 3 days ago. I would like to do wait and see approach. If it becomes necessary then i don't mind ivig. We are in uk. Please can you give me your views.
Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006.
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It is your decision. A doctor can, however, refuse to see your daughter if you go against medical advice. If that happens, you would have to find a doctor who will support your watch and wait approach. It is probably easier to find a doctor in the UK who will do that because the UK generally believes in watch and wait more readily than the US does. Hopefully, you can compromise and use IVIG if necessary.
Sali, if you get in touch with the ITP support association
they will giv e you a list of the NHS centres they have approved as specialising in ITP. You just need to ask your GP for a referral for a second opinion. I don't know where you live, but Dr Grainger at Manchester Royal Children's Hospital has been great with not treating my son
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