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98,000!!!!!!!!!!!! 9 years 8 months ago #31585

  • Stoic
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After 2 years of hopelessness. Of people attacks, of everything. Jesus has brought us to living waters. We have been working with a Homeopathy practitioner in SoCal and after my daughters last dose 2 weeks ago we just went in for a blood draw and the doctor called back 10 minutes later and said "What are you doing" since we rejected the standard mode of their treatment they didn't want anything to do with us anymore. But now we are at 98,000 and the doctors are amazed when we tell them what we did. She has been at a 0-5 for 2 years!!!!!! PLEASE no negative comments I don't want to hear anybody's "But" comments anymore. Dealing with haters has been almost as hard as the ITP....PRAISE GOD. :woohoo: :woohoo: :woohoo:
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98,000!!!!!!!!!!!! 9 years 8 months ago #31590

  • babeflover
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As a parent of a teen whose last count was 158K with natural supplements only, i commend you. You stopped giving those horrible chemicals to your child. Well done. I love it.
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98,000!!!!!!!!!!!! 9 years 8 months ago #31591

  • april
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Yay!!! So happy for your family :)
A beautiful way to start the Spring season and Easter celebration! All Glory to Him!
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98,000!!!!!!!!!!!! 9 years 8 months ago #31594

  • alicein
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Stoic,

I am SO excited for you guys! We walked away from medicine 2.5yrs ago and have never looked back. Although our boy wasn't at 0 as long as your girl, it was way too long for comfort (months vs. your years). But when platelets came after homeopathy started we were so thrilled and relieved! And yes, we experienced all of the same negativity you did. From doctors, friends, church people, this site, etc. It was definitely horrible. I'm so glad you stuck with it. H-pathy does work and it works beautifully and safely! It is our main mode of medicine now and we have no regrets.

God bless your family and what a great way to go into Easter!

Patti
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98,000!!!!!!!!!!!! 9 years 8 months ago #31595

  • juliannesmom
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Whether homeopathy worked or her system did it on its own, I am glad for you, your daughter, and those who have surely been worrying over her health. As for haters, I don't see where anyone has ever posted anything hateful toward you on this forum. (Perhaps it was deleted.) I should certainly hope they wouldn't. Some of us do believe in mainstream medicine, and are skeptical of homeopathy. It doesn't mean we hate anyone. It's just the choice we make when considering all options. I'm delighted for your child's counts, and hope this improvement will continue.
Norma
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98,000!!!!!!!!!!!! 9 years 8 months ago #31600

  • crystal lee
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Super!! I am so happy for you :) I know what you are saying, and I can even say feeling now!! Less than 2 weeks ago my son went to 70 (10 months 0-3, next 10 under 20) than one week later up to 113! We are also using homeopathy, and for us it was not a quick fix, but I noticed very important changes (for almost a year straight almost every time he went potty it was streaked with blood, Dr suggested so many different things, nothing worked..Gave him a remedy within a week it improved, and I haven't seen blood in months now) (YES, it was an improvement it improved in many ways but I will spare those details here ;) ) So many times I felt hopeless, so many times I started looking into treatments again, feeling I can't do this forever. My heart just kept telling me not yet, stick with it a little longer. He was only 1 and they wanted to TRY 6mp and they talked about taking his spleen..

I share your joy and I am so happy for your daughter (and you of coarse)!!!
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98,000!!!!!!!!!!!! 9 years 8 months ago #31603

  • desafina
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A succes story is a success.
I am so happy for you guys.

Can you elaborate more on what the homeopathic practitioner gave/did?

Thanks !!
The following user(s) said Thank You: crystal lee
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98,000!!!!!!!!!!!! 9 years 8 months ago #31606

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To make myself clear NO ONE on this site hated on me. It was all from other people in our life. At the same time we where cautioned by both the regular doctor and Homeopathy friend in SoCal that we still need to monitor the situation for 6 months and continue on the straight and narrow. When you walk through the valley of the shadow of death for 2 years and the doctor calls you and says 98,000 no matter if it went back to 0 next week it is still a miracle for us because nothing else seemed to work and now we have hope. After I kept reading about traditional treatment I was thinking why put yourself through it if it doesn't work? Like a previous poster had said months ago when some people use the tradition treatments and they work!!!! They leave the site and don't post anymore because they have no reason to be here anymore, they are healed! So when you come to this forum and all you hear is how this treatment failed and so did that one and you read it over and over again you have to remember that fact. But I need to remember that no matter if it is traditional or alternative treatments if it works do it and that what works for some may not work for others. I speak as a uninformed man mostly so take what I say with a grain of salt. I posted the the haters thing because when you ride on a breath of fresh air no matter where you go you run into downers, I just wanted to ride as long as I could. :)
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98,000!!!!!!!!!!!! 9 years 8 months ago #31607

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April I knew this was you!!!! You sneaky Pete!!!! Thanks for your patience with me. I am a little rough around the edges but I have a friend who is working with me on that... :whistle:
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98,000!!!!!!!!!!!! 9 years 8 months ago #31608

  • eklein
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I used Rituxan and it worked, I'm four years in remission. I didn't leave the forum.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
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98,000!!!!!!!!!!!! 9 years 8 months ago #31610

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That is so mind blowing Erica That is the only victory story I have heard. It gives me even more hope!!! Maybe I should open my eye's more there are probably more like you on here I just need to look more. I am not the sharpest knife in the drawer either. :blush: :side: :S
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98,000!!!!!!!!!!!! 9 years 8 months ago #31611

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O.K. I just wanted to check with April Bowen before I shared our journey. We found April on here. My daughter Avery has been at a 0-5 for almost 2 years. April does Homeopathy and we don't know much about it but we trusted April because she didn't seem like a flake. Homeopathy seemed to simple when I studied it :ohmy: but we where willing to try. Anyways April recommended a remedy she had sent us and some cell salts. We did this for a month or so and a few weeks ago April recommended trying another remedy which appears to have worked. We also tried some remedy's on some other ailments in the family and the problems went away, sometimes over night. I am not promoting this line of treatment for advertising purposes or to boast about April. All I am saying is I CAN NOT DENY that this treatment approach has helped Avery and seemed to have overcome a list of other things. Before we where sick but now we are well in area's... :)... I don't know if it matters to anybody else but it does to us that we also have clung to the Lord Jesus Christ for sustenance in this trial. I don't know how others do it on here with out Him, He came through in so many ways in a tangible way for us.
Hopefully I have not broke any site rules by this post. It is what it is. I give Glory to Jesus Christ for blessing us with April Bowen and her style of treatment... B)
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98,000!!!!!!!!!!!! 9 years 8 months ago #31615

  • alicein
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Stoic,

Your posts make me smile. :) I'm so glad you have discovered homeopathy. I fully believe God has given us, on the earth that He created, all that we need to heal. And while we live in a fallen world, he did make our bodies to heal if we give them the right substances. I would encourage you to learn all you can about h-pathy. It is a fantastic form of health care, is inexpensive, effective, and above all, non-toxic to the bodies God gave us. And for fun, you will actually find a handful of times in the bible where God used like to cure like (think the waters of Marabah, etc.). I have the list if you ever want it. It's quite interesting. Not that I think God created homeopathy, but instead we see the principal of curing like with like in several places biblically.

Avery's platelets may go up and down for a bit as she stablizes. Do NOT let that discourage you. We had some ups and downs along the way but we did not see those low numbers again. So stick with it and in no time this will be a distant memory.

Blessings,

patti

Rom. 8:28
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98,000!!!!!!!!!!!! 9 years 8 months ago #31617

  • juliannesmom
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Remission is wonderful, whatever its cause. Some of the older posts on this site are no longer accessible, but you can find prior posters' stories of remission, credited to drugs, natural therapies, or "who knows?" (Some of mine are on here.) They do give hope to others, especially the newcomers. If your child continues to do well, please come back here and post about it from time to time to encourage those who are in despair. Remission can happen even after a "chronic" label is applied. My daughter has been one of the good stories. I was a nervous worried wreck for about two years as well. She was almost 13 years old when diagnosed. In the first year, she had four hospitalizations, three of which included IVIG administration and one for side effects of IVIG (after her first time, but we learned how to better prevent the side effects after that). She was sidelined from most sports and physical activities. (Mild tennis was allowed if the count was over 30, but often, it wasn't.) She had two emergency room visits for nosebleed, one of which resulted in her final IVIG admission. After the last IVIG, her counts gradually rose to a safe level, then gradually to normal. (I can't say it was the last IVIG, but I can't say it wasn't. She never went dangerously low again after that.) She has had dips from time to time, and she has had at least one CBC per year (for school physicals while in high school and during a recent nosebleed ER visit -- great count -- turns out sometimes a nosebleed is just a nosebleed). Enjoy the highs, and hope they last. If your child stays in remission, it will be tough at first to learn how not to worry about platelets. (Unfortunately, when raising kids, some other worry, like dating, cars, college, etc., will take its place. :)
Norma
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98,000!!!!!!!!!!!! 9 years 8 months ago #31653

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Bad news folks. Her counts must have slammed back down to 0!!!! Bleeding from eye, nose bleeds today and petichia all over with bruising. what a roller coaster!! I should have asked you veterans first before I started blowing my horn :S :dry: :unsure: :( I feel as if I let you all down and myself & my family...Don't know why....
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98,000!!!!!!!!!!!! 9 years 8 months ago #31658

  • jeffrey71
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You have let no one down! Keep your faith and keep trying! It is the season for miracles! Keep us posted!

Jeffrey
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98,000!!!!!!!!!!!! 9 years 8 months ago #31663

  • alicein
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Bad news folks. Her counts must have slammed back down to 0!!!! Bleeding from eye, nose bleeds today and petichia all over with bruising. what a roller coaster!! I should have asked you veterans first before I started blowing my horn :S :dry: :unsure: :( I feel as if I let you all down and myself & my family...Don't know why....



Stoic,

This is going to happen in the beginning. Just hang on. Right now, her body is going to go back and forth just a bit like a pendulum as her body seeks the balance that is normal (which is not eating platelets). When Luke would do this it would very rarely last but a few days before he'd start building back up again. Let her remedy work in her body and her body will do what it needs to. Has the pendulum in homeopathy treatment been explained to you?

patti
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98,000!!!!!!!!!!!! 9 years 8 months ago #31668

  • juliannesmom
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My daughter had some roller coaster moments right before she went into remission. Don't get discouraged. Has she had a count? Some folks have some bleeding moments even when the counts are safe. (My now college-aged daughter had an ER visit for a nonstop nosebleed, but her count was over 200,000.) Hang in there.
Norma
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98,000!!!!!!!!!!!! 9 years 8 months ago #31669

  • crystal lee
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Juliannesmom- Thank you for staying around and posting here..It is the positive success stories that help us get through and hang on to hope. Happy your daughter is doing well :)

Stoic- Hang in there, she did it once, hopefully she can do it again! I know how upsetting, frustrating and discouraging it can be!!
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98,000!!!!!!!!!!!! 9 years 8 months ago #31686

  • crystal lee
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Alicein did your son look worse than normal while his body was adjusting? Everytime I look at my son he looking worse I have not seen him this bad in a long time :(
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98,000!!!!!!!!!!!! 9 years 8 months ago #31688

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We stayed up all night last night. Nose bleed would not stop. She puked blood and chunks everywhere 3 times in the last 24 hours. She looked very bad. Very pail. I got some electrolyte water in her and a small tuna sandwich with some sweet potato for supper. And she has been on the couch for 2-3 hours and is starting to come around. I gave her a short bath and sponged her off because she smelled so bad. She looks a lot better. I am going to put her humidifier on tonight and put her to bed around 7:30..April did tell us that her body may swing but we where riding so high on our cloud we didn't take it seriously until now. April has told us what to do in the last 24 hours and what to expect and so far her observations have been right on! We should be in for a quite night because she was up all night also.... :sick: :unsure:
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98,000!!!!!!!!!!!! 9 years 8 months ago #31692

  • alicein
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Alicein did your son look worse than normal while his body was adjusting? Everytime I look at my son he looking worse I have not seen him this bad in a long time :(


I think since this is the first time his platelets have really swung higher for you it is going to take awhile for his body to look healthy. And he WILL swing up and down. Just count on it. And he isn't going to necessarily look great while that is happening.

I'm not sure Luke looked "worse then normal" when his platelets were swinging. I think he looked "different" then normal. I think what was so hard for me is we'd gotten used to him looking so good and feeling so good that if he had a swing and he didn't look that good it would be difficult, and of course, concerning. When his platelets were zero to 20 he had a grey hue to his face and little energy. We stopped seeing that early in treatment. We would wonder if we were going backwards EVERY SINGLE TIME he would swing. Seriously, you'd think even with me knowing that was going to happen, and having been through it several times, that I would have been fine with it. But I think as a parent there is always that nagging feeling in the back of your mind, "what if?" A ways out now (3yrs in Aug. we started h-pathy), I would say I'm less fearful of swings (if I do see one). They are few and far between this far into treatment. And this far in, he NEVER looks horrible like he did when he was at zero. Now we mostly are looking to see his gut heal so I look for/see different things then 2yrs ago.

Not sure that helped at all. :unsure:

patti
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98,000!!!!!!!!!!!! 9 years 8 months ago #31694

  • eklein
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Stoic, your child is puking blood, did you alert your doctor? Crystal lee, your son is looking worse and worse, did you alert your doctor? These sound like urgent situations where your child might need medical intervention.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
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98,000!!!!!!!!!!!! 9 years 8 months ago #31695

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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I agree. None of us have seen your child and are only going by your description. Has anyone taken vital signs or are you able to diagnose dehydration or other alarming bodily decline symptoms?

You can't just go by Internet advice telling you this is normal. You need to have those children properly evaluated.
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98,000!!!!!!!!!!!! 9 years 8 months ago #31696

  • alicein
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Stoic, your child is puking blood, did you alert your doctor? Crystal lee, your son is looking worse and worse, did you alert your doctor? These sound like urgent situations where your child might need medical intervention.
Erica



Really? I guess I like to give parents more credit then this. I'm pretty certain if either thought their kid was in medical danger they'd get medical care for them. Additionally, I haven't met one natural practitioner in 5yrs that wouldn't suggest a parent do so if they thought a person (or kid) was truly in danger. Maybe I just trust parents having enough common sense that they don't need someone from a forum to remind them. :huh: Or maybe you're just so used to doctors that you don't or won't accept that other practitioners have some common sense to know when it's needed? Additionally, since you seem mostly unaware of what natural healing entails, things that are considered "healing" (fevers, rashes, etc) you would see a need for an MD for? Unless you have a good knowledge of a mode of healing, I'd think it'd be a bit tough to make these calls for someone else.
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98,000!!!!!!!!!!!! 9 years 8 months ago #31697

  • alicein
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I agree. None of us have seen your child and are only going by your description. Has anyone taken vital signs or are you able to diagnose dehydration or other alarming bodily decline symptoms?

You can't just go by Internet advice telling you this is normal. You need to have those children properly evaluated.


Sandy, you are presuming that this person's practitioner is stupid. There were times Luke detoxed that would have freaked you out, but he was fine. This parent has clearly taken steps for the care of his child and clearly stated she is improving. Give the parent some credit. When a parent chooses an alternative practitioner, it's no different then you choosing a doctor. You do so with great care, great trust, and great time investment. Don't cut these parents or practitioners so short. Please?
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98,000!!!!!!!!!!!! 9 years 8 months ago #31698

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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I am going to tell you a story. A few weeks ago, my Mom called me and said she was sick. I picked her up and took her to Urgent Care. She looked like she had a mild flu or bronchitis. Temp was 99 degrees.

We got to Urgent Care and they took vitals. They immediately called an ambulance to get her to the ER because her vital signs were bad. I would not have known that by looking at her. Her BP was very high, EKG showed irregular heart rhythm, and her breathing was shallow.....oxygen was at 92%. I could not have known those things without the medical tools to evaluate her.

I am not stupid and can recognize a medical emergency, but after that, I do not trust myself anymore. This has nothing to do with trusting parents. This has to do with the ability to be able to assess a child's medical well-being.

This has gone too far and amounts to playing with fire. Enough.
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98,000!!!!!!!!!!!! 9 years 8 months ago #31700

  • eklein
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Sandy, you are presuming that this person's practitioner is stupid.


Wow, I was assuming this person's practitioner was endangering a child through ignorance and magical beliefs, but I'm willing to go with your terminology.
Erica

And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
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98,000!!!!!!!!!!!! 9 years 8 months ago #31701

  • eklein
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Sorry I didn't use the quote function correctly, first time. I think the correct quotes are clear though.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
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98,000!!!!!!!!!!!! 9 years 8 months ago #31702

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I really, really, really hope this thread/story doesn't have a tragic ending. That's all I can say.
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