Platelet Disorder Support Association

Join Us:

Membership Matters

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Polycythemia vera; myeloproliferative disorder

More
15 years 6 months ago #6929 by eklein
Polycythemia vera; myeloproliferative disorder was created by eklein
Anyone familiar with polycythemia vera; myeloproliferative disorder? My uncle has it and is having a transplant, not sure if it is bone marrow or stem cell, from a stranger donor. I'll google it myself, just wondering if anyone has personal knowledge.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

Please Log in or Create an account to join the conversation.

More
15 years 6 months ago #6930 by eklein
Replied by eklein on topic Re: Polycythemia vera; myeloproliferative disorder
OK I think he has acute myelogenous leukemia after having the other thing. Google info is very bad. :(
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

Please Log in or Create an account to join the conversation.

More
15 years 6 months ago #6935 by Birgitta-A
Replied by Birgitta-A on topic Re: Polycythemia vera; myeloproliferative disorder
Hi Erica,
Here are the adresses to 2 support groups for patients with MPD - most members have polycytemia:
listserv.aol.com/archives/mpd-support-l.html
listserv.acor.org/SCRIPTS/WA-ACOR.EXE?A0=MPD%2dNET&t=&X=4FA89C3DE16F274901
Kind regards
Birgitta-A

Please Log in or Create an account to join the conversation.

You’re not alone. We have answers! Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or PDSA@PDSA.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

© Copyright 1997 - 2026, Platelet Disorder Support Association. All rights reserved.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.