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Polycythemia vera; myeloproliferative disorder

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14 years 6 months ago #6929 by eklein
Anyone familiar with polycythemia vera; myeloproliferative disorder? My uncle has it and is having a transplant, not sure if it is bone marrow or stem cell, from a stranger donor. I'll google it myself, just wondering if anyone has personal knowledge.
Erica

And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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14 years 6 months ago #6930 by eklein
OK I think he has acute myelogenous leukemia after having the other thing. Google info is very bad. :(

And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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14 years 6 months ago #6935 by Birgitta-A
Hi Erica,
Here are the adresses to 2 support groups for patients with MPD - most members have polycytemia:
listserv.aol.com/archives/mpd-support-l.html
listserv.acor.org/SCRIPTS/WA-ACOR.EXE?A0=MPD%2dNET&t=&X=4FA89C3DE16F274901
Kind regards
Birgitta-A

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