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Painful bones 13 years 7 months ago #600

  • julia
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Does anyone find they get chilled and in pain to the bones with the cold? I've always felt the cold but this recent cold snap my fingers are very stiff, sore thru to the bone and look quite red and swollen. Im finding it so hard to warm up also the rest of my old bones are sore with the cold.
Julia

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Re: Painful bones 13 years 7 months ago #606

  • Melinda
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Julia recently my sister and I were saying how we have felt the cold clear to our bones
this winter. We live in a dry climate, high altitude. It makes my fingers hurt, have arthritis in some of them, and it makes my neuropathy symptoms worse. My fingers haven't gotten red & swollen though. What I've been doing when an arctic front is here or just
plain old cold weather is wear long underwear under my clothes - I have a brand called Cuddl Duds, thin and don't even know I have them on except I'm warmer.

If that keeps up do you think you should see the doctor?

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Re:Painful bones 13 years 7 months ago #613

  • julia
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Thanks Melinda, im going to look for some thermals they sound good! Im going to mention it to the heama end march when ive got my next appt if i last that long. Ive got physio in 2wks so will tell him too. Its 0degrees here at the min but i see in America & Canada its so much worse & dont think i could cope with that.
Give Killian a hug from me!
Julia

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Re:Painful bones 13 years 7 months ago #619

  • Melinda
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I would certainly mention it when you go for physio in a couple weeks Julia! Can't hurt right :)

I really like my long underwear [pants & top], they are thin & not bulky at all - I really can't tell I have them on, but they do keep me warm!

Sounds plenty cold where you are - I'm so looking forward to summer [spring where I live can still bring cold and snow].

Thank you, how sweet - I will give Killian that hug!

Melinda

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Re:Painful bones 13 years 7 months ago #622

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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I'm very affected by cold too. It's horrible. My skin burns and muscles and joints get painful. The only time I feel normal is when I'm under my electric blanket with the setting on 8. Wish I could just stay there!

I'd definitely mention it to your doctor.

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Re:Painful bones 13 years 7 months ago #627

  • Kim
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  • Diagnosed with ITP in 1983, lupus in 1990, APS in 2001, vasculitis in 2006. Current platelet count 148. In 2007 I had a stem cell transplant for autoimmune disease and currently ITP and APS remission, with a reduction in lupus activity.
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The cold causes burning and pain for me too, although I don't do well with an electric blanket or a heating pad, because if I warm up too much, I get burning skin with that to. I have to maintain a comfortable body temp, because if it changes too much either way, I have burning pain. I don't like it to warm or to cold. If I could find a place to live that had 70-80 degrees all year long and no fluctuations in temp or dry to wet to quickly, because that's also a problem for me. If it's too dry or too damp or swinging from dry to damp.

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Re:Painful bones 13 years 7 months ago #657

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Kim:

We went spelunking once and were told that caves keep a constant temperature. Wanna live in a cave? (kidding)

I sweat a lot when it's hot, but feel fine otherwise. Snow and rain make me ache also and cause my sinuses to be stuffy 24/7.

Does anyone remember what it was like to feel normal?

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Re:Painful bones 13 years 7 months ago #681

  • Melinda
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You mean how I'm feeling isn't normal?!

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