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Painful bones

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14 years 9 months ago #600 by julia
Painful bones was created by julia
Does anyone find they get chilled and in pain to the bones with the cold? I've always felt the cold but this recent cold snap my fingers are very stiff, sore thru to the bone and look quite red and swollen. Im finding it so hard to warm up also the rest of my old bones are sore with the cold.
Julia

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14 years 9 months ago #606 by
Replied by on topic Re: Painful bones
Julia recently my sister and I were saying how we have felt the cold clear to our bones
this winter. We live in a dry climate, high altitude. It makes my fingers hurt, have arthritis in some of them, and it makes my neuropathy symptoms worse. My fingers haven't gotten red & swollen though. What I've been doing when an arctic front is here or just
plain old cold weather is wear long underwear under my clothes - I have a brand called Cuddl Duds, thin and don't even know I have them on except I'm warmer.

If that keeps up do you think you should see the doctor?

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14 years 9 months ago #613 by julia
Replied by julia on topic Re:Painful bones
Thanks Melinda, im going to look for some thermals they sound good! Im going to mention it to the heama end march when ive got my next appt if i last that long. Ive got physio in 2wks so will tell him too. Its 0degrees here at the min but i see in America & Canada its so much worse & dont think i could cope with that.
Give Killian a hug from me!
Julia

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14 years 9 months ago #619 by
Replied by on topic Re:Painful bones
I would certainly mention it when you go for physio in a couple weeks Julia! Can't hurt right :)

I really like my long underwear [pants & top], they are thin & not bulky at all - I really can't tell I have them on, but they do keep me warm!

Sounds plenty cold where you are - I'm so looking forward to summer [spring where I live can still bring cold and snow].

Thank you, how sweet - I will give Killian that hug!

Melinda

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 9 months ago #622 by Sandi
Replied by Sandi on topic Re:Painful bones
I'm very affected by cold too. It's horrible. My skin burns and muscles and joints get painful. The only time I feel normal is when I'm under my electric blanket with the setting on 8. Wish I could just stay there!

I'd definitely mention it to your doctor.

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  • Kim
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  • Diagnosed with ITP in 1983, lupus in 1990, APS in 2001, vasculitis in 2006. Current platelet count 148. In 2007 I had a stem cell transplant for autoimmune disease and currently ITP and APS remission, with a reduction in lupus activity.
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14 years 9 months ago #627 by Kim
Replied by Kim on topic Re:Painful bones
The cold causes burning and pain for me too, although I don't do well with an electric blanket or a heating pad, because if I warm up too much, I get burning skin with that to. I have to maintain a comfortable body temp, because if it changes too much either way, I have burning pain. I don't like it to warm or to cold. If I could find a place to live that had 70-80 degrees all year long and no fluctuations in temp or dry to wet to quickly, because that's also a problem for me. If it's too dry or too damp or swinging from dry to damp.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 9 months ago #657 by Sandi
Replied by Sandi on topic Re:Painful bones
Kim:

We went spelunking once and were told that caves keep a constant temperature. Wanna live in a cave? (kidding)

I sweat a lot when it's hot, but feel fine otherwise. Snow and rain make me ache also and cause my sinuses to be stuffy 24/7.

Does anyone remember what it was like to feel normal?

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14 years 9 months ago #681 by
Replied by on topic Re:Painful bones
You mean how I'm feeling isn't normal?!

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