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Sandi seriously?! 5 years 6 months ago #62848

  • MelA
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You locked the thread? Did you do that because I do not agree with you? That is from Autism Speaks, they should know - but since you do not agree with it you lock it. That blows my mind! You can post anything YOU want regarding vaccines but no on one else can - got it, as long as you agree with an answer or a topic it is ok, but if you do not agree with it then you move it and/or you lock it. It will be interesting to see how long you allow this thread to stay!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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Sandi seriously?! 5 years 6 months ago #62849

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Mel:

I did not lock it because you and I disagree. I locked it because that debate can get heated (with many people, not just you) and the PDSA policy is that there should not be discussions on controversial topics. I know vaccines have been discussed in the other thread and it did get somewhat heated, but I was posting articles about autoimmune disorders, not autism. The topic about autoimmune disorders is very relevant to us, especially since ITP is listed in the vaccine package inserts. There is a very real disorder called "AISA" or Autoimmune Inflammatory Syndrome Induced by Adjuvants.

"In 2011 a new syndrome termed 'ASIA Autoimmune/Inflammatory Syndrome Induced by Adjuvants' was defined pointing to summarize for the first time the spectrum of immune-mediated diseases triggered by an adjuvant stimulus such as chronic exposure to silicone, tetramethylpentadecane, pristane, aluminum and other adjuvants, as well as infectious components, that also may have an adjuvant effect. All these environmental factors have been found to induce autoimmunity by themselves both in animal models and in humans: for instance, silicone was associated with siliconosis, aluminum hydroxide with post-vaccination phenomena and macrophagic myofasciitis syndrome. Several mechanisms have been hypothesized to be involved in the onset of adjuvant-induced autoimmunity; a genetic favorable background plays a key role in the appearance on such vaccine-related diseases and also justifies the rarity of these phenomena. This paper will focus on protean facets which are part of ASIA, focusing on the roles and mechanisms of action of different adjuvants which lead to the autoimmune/inflammatory response. The data herein illustrate the critical role of environmental factors in the induction of autoimmunity. Indeed, it is the interplay of genetic susceptibility and environment that is the major player for the initiation of breach of tolerance."
www.ncbi.nlm.nih.gov/pubmed/24238833

All of us do whatever we can to keep counts up and try to avoid triggers. We also do what we can to avoid getting another autoimmune diagnosis. This has nothing to do with childhood vaccines and autism and I don't understand where that came from all of a sudden. People assume that vaccines are perfectly safe. They are not. All it takes is reading the actual inserts and seeing all of the side effects to see that. I've also researched the adjuvants and read actual studies. Most of the time, saline placebos are not used in the safety studies; they use another vaccine to compare so the side effects will be comparable on both sides. I don't know....if someone were trying to tell me something like that, I'd keep an open mind and look into it. I wouldn't say any of this unless I was sure of it. I've done three years of research. In the package insert for Gardasil, 'death' is listed right in between fever and chills. Wouldn't you want to know that as a parent before deciding on it? Girls ARE dying. Informed consent is totally missing whenever anyone is injected with vaccines. Well, that's off-topic so all I will say at this point is that autism is irrelevant and that is why I locked it, not because we disagree. I've been disagreed with before on many other things and never locked a thread.

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Sandi seriously?! 5 years 6 months ago #62850

  • MelA
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I mentioned to some former members who are ITPers that the thread was locked - one replied:
"That was always the case with them"
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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Sandi seriously?! 5 years 6 months ago #62851

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Mel - I have not locked or deleted a thread in years! Can you even find another one? That is a very unfair, inaccurate statement. You've been here long enough to know that isn't true.

What's going on? I don't know where this sudden attack is coming from. I locked a thread about an autism controversy. Can't you understand why after my explanation? Did you really want to go back and forth about autism? If you'd like to politely discuss vaccines and autoimmune disorders, go to my thread about Autoimmune Disorders Exploding. I'd be happy to discuss that with you.

If you're unhappy with me as a Moderator, write a complaint to Carolyn. I get no compensation for this and have tried to do the best job that I could for years. I try to be fair. I can be replaced at her discretion.

I wasn't aware that you discussed me behind my back. Thanks for the heads up.....appreciate that.

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Sandi seriously?! 5 years 6 months ago #62856

  • MelA
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I am not going to get into an argument with you - and I did not discuss YOU behind your back, I discussed that a thread about vaccines and autism by Autism Speaks I started was locked where all other threads about vaccines and how vile & nasty & evil & not necessary they are, which is a controversial topic, have never been locked. And autism/vaccines have been discussed here in the past.

No heads up needed as no discussion about YOU!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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Sandi seriously?! 5 years 6 months ago #62858

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12436
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It will never cease to amaze me that people will automatically defend vaccines without even looking into it. There's this huge cognitive dissonance. They are no different than a drug. You'd read the side effects of a drug and believe those were possible, wouldn't you? How can anyone consider themselves to be informed without even taking a look? Vaccines are not just comprised of saline and a disease antigen. They are full of toxic ingredients. The whole purpose of the adjuvants is to cause an inflammatory response so the antigen lasts longer. Some people can handle it, some cannot, especially those of us with autoimmune issues. I've never describe them as vile, evil and nasty. I've pointed out the dangers which are well documented, especially in the vaccine inserts themselves. SIDS is listed as a side effect. How many people are aware of that? If you knew, wouldn't you think twice before injecting it into your baby? They have animal cells in them....dog, pig, chicken, monkey and most recently, caterpillar. If you study what that can do to the body on a cellular level, you get a better understanding of the things that can go wrong. They have carcinogenic and tumorigenic ingredients, as well as neurotoxins. Anyone who personally wants to keep getting vaccines, go for it. It's your decision. I got one myself about six years ago before I began to look into it. I will never do it again. Shortly after that, the joints in my hands began to swell and have been getting worse ever since. I'm losing basic hand function. All I was trying to do is raise awareness.

If they were so safe, why would there be a special fund set up (National Vaccine Injury Compensation) that has paid out over 4 billion since 1986? Why are vaccine manufacturer's not held liable for vaccine injuries? Why are safety studies not held to the same standards as those for drugs? I could go on and on.

If autism and vaccines were discussed in the past, it's because the discussion got pulled in a hundred different directions and got off-track. I started the thread initially about autoimmune disorders and that was my point.

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Sandi seriously?! 5 years 6 months ago #62865

  • MelA
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You are being controversial - please delete my account, I've looked and can't find a way to do it.
Thank you.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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Sandi seriously?! 5 years 6 months ago #62866

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12436
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I'm sorry you feel that way, Mel. You started a controversial thread, then accuse me of being controversial. I'm not sure how you expected that to go.

When I logged in, I planned to say, "Let's take a step back and let me explain what caused me to look into it in the first place". I was going to give you a very short, factual synopsis of my findings on the subject. I was going to try to discuss this like two adults should. When people disagree, it's always a good idea to hear the perspective of the other person because there is a possibility that they may have a good point. I did not say anything that isn't fact and can't be proven. I'm open to that discussion if anyone else wants to know.

I don't have the capability to delete accounts. You do not have to leave the PDSA simply because we disagree. I'm quite capable of moving on from this without animosity. Disagreements are part of life.

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