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Update 5 years 2 months ago #60719

  • alisonp
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I haven't got a lot to say here, which is good! After four or five months of constant heavy nosebleeds, Dougie had his nose cauterised in May and mercifully, that seems to have cured the problem. His last count in late May was in the 30s which is great and he mostly has no symptoms at all. He's off to University next week so I hope it stays that way and he has no problems while he is gone. Oh, and he ran his first marathon in August. All in all, a really positive few months. I hope you are all doing well. Ali

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Update 5 years 2 months ago #60722

  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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Doesn't Dougie have a pretty strong response to Nplate, with a 70 count after two treatments?

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Update 5 years 2 months ago #60724

  • alisonp
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Good memory! Yes, he did seem to get a good result from that.

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Update 5 years 2 months ago #60726

  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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LOL, I cheat and use the 'search' page for historical info.

Do you recall? When he had IVIG, was that a two day treatment or ?

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Update 5 years 2 months ago #60730

  • alisonp
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That was a long time ago!!! No, it was definitely one day.

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Update 5 years 2 months ago #60738

  • momto3boys
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I haven't got a lot to say here, which is good! After four or five months of constant heavy nosebleeds, Dougie had his nose cauterised in May and mercifully, that seems to have cured the problem. His last count in late May was in the 30s which is great and he mostly has no symptoms at all. He's off to University next week so I hope it stays that way and he has no problems while he is gone. Oh, and he ran his first marathon in August. All in all, a really positive few months. I hope you are all doing well. Ali


Awesome news! Thanks for popping in with a happy update :)

Hope he has a great experience at University and great job on the marathon!
The following user(s) said Thank You: alisonp

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Update 5 years 2 months ago #60741

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Oh my goodness! He's all grown up! Thanks for checking in, Alison. We miss you around here!

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Update 5 years 2 months ago #60743

  • alisonp
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Thanks. I occasionally pop in to read posts but ITP is kind of a non-event in our house since his count went over 20 or so. I feel like a bit of a fraud posting anything!! Yes he is all grown up.....19 at the weekend.

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Update 5 years 2 months ago #60747

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12436
  • Karma: 11
  • Thank you received: 2369
Feel like a fraud? No way! Your input is very valuable. I am always happy to have your calm voice around here for others!

I'm still here and have been in remission since 2005. Experience and knowledge counts!
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