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7 years 5 months ago #57266 by CindyL
Facebook was created by CindyL
I just looked on face book for the ITP page and got two hits. Is there a difference between the two? Which one do you guys recommend?

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7 years 2 months ago #58222 by Winnifred
Replied by Winnifred on topic Facebook
This is the link for the facebook page attached to PDSA

www.facebook.com/groups/PlateletDisorderSupportAssociation/

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7 years 2 months ago #58228 by CindyL
Replied by CindyL on topic Facebook
Thanks Julia! That's not the one I found! I'm waiting to be accepted!

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7 years 2 months ago #58415 by Barb111
Replied by Barb111 on topic Facebook
Interesting. I followed that link Winnifred and sent a group request as it says closed group. But the description says open group. Would prefer my medical information remain private.

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7 years 2 months ago #58416 by CindyL
Replied by CindyL on topic Facebook
I haven't seen anyone's medical info other than what they post. I had to be approved/accepted.
Now I'll have to go look!

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7 years 2 months ago #58418 by Barb111
Replied by Barb111 on topic Facebook
It is a closed group. It says open group in the description by mistake. They responded to my question.

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7 years 2 months ago #58427 by CindyL
Replied by CindyL on topic Facebook
Good to know!

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