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TOPIC: ? for Sandi

? for Sandi 5 years 9 months ago #45138

  • CindyL
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Hey Sandi, have you heard from or know anything about bonbon? Like, how she is? Anything at all. Been thinking about her recently.

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? for Sandi 5 years 9 months ago #45141

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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NO, I haven't. I think of her often though. I lost touch when we switched to this new format. She couldn't get the hang of it and dropped off. Melinda may know - she was closer to her.
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? for Sandi 5 years 9 months ago #45145

  • Melinda
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Unfortunately I have no idea what happened to Yvonne [bonbonw] - I tried to make it easy for her to understand how to get in this new site but she still had trouble. We emailed and I also sent her notes via real mail. I have lost her address over the years - but the last ones I had sent her never got a response (I was hoping that if she had died one of her children would have seen the note from me and replied, but never heard anything). She had some trouble because the IVIg that worked for her was hard to come by - one time they gave her a different brand and that wasn't good. In 2006 she emailed me a Guardian Angel, I have kept it and will try to post it here as I know she would have wanted all of us to have a Guardian Angel - she cared for everyone and was just such a dear person!

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? for Sandi 5 years 9 months ago #45147

  • CindyL
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Thanks, ladies. I knew she was having trouble getting into the new site. I hope she's doing ok. And yeah, you'd think that someone would let you know, Melinda. Maybe no news is good news?

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? for Sandi 5 years 9 months ago #45154

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Yeah, I remember trying to help her too, but she just couldn't do it. It was almost like she wanted to give up on it.

Melinda - I love that guardian angel! SO nice that it came from Yvonne!

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? for Sandi 5 years 9 months ago #45160

  • Melinda
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Sent you an email Cindy.

Sandi isn't that a neat guardian angel, and even more so because it was from Yvonne! I really like/d that lady!

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? for Sandi 5 years 9 months ago #45162

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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I know you did. She was sweet. I never like it when people disappear and you never know what happens to them.

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? for Sandi 5 years 9 months ago #45163

  • CindyL
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And she was knowledgeable! I miss her words of wisdom.

Melinda, when did you send the e-mail? It hasn't come through yet.

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? for Sandi 5 years 9 months ago #45167

  • Melinda
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I think I felt protective of Yvonne - she just tugged at my heart because she was refractory except to that one brand of IVIg, and she was just so kind & thoughtful. And you are right Cindy, she was knowledgeable.

Cindy I sent it through your profile a day ago at least. Maybe it went to your trash or spam - in the subject line I had From ITP Melinda if I remember right.

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? for Sandi 5 years 9 months ago #45169

  • Winnifred
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I remember bonbon/ Yvonne that name goes way back. There are quite a few people I have often wondered about over the years!

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? for Sandi 5 years 9 months ago #45170

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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I've kept in touch with a few. Gary, Kim and Jeannie from way back in the late 1990's.

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? for Sandi 5 years 9 months ago #45176

  • Winnifred
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I remember being one of the newbies desperately looking for information coming to the chat forum. I was terrified I was going to die literally having nightmares. Do not think I could of learned to handle my ITP the way I do if it wasn't for the people I met and chatted with.

Hard to believe it was so long ago! I remember joining a group of Ausie's use to chat would have to get up extremely early to join in. Lost one of those members :(

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? for Sandi 5 years 9 months ago #45185

  • CindyL
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How's Kim doing, Sandi? I think about her often, too.

Hmm, I don't know where it could be, Melinda. Maybe it's just taking time to come through. Or maybe you have an old e-mail address. Does the one you have have 33 in it?

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? for Sandi 5 years 9 months ago #45191

  • Melinda
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Cindy I sent the email from your profile here so it would have gone to the email address you used when you signed up. Sent it as I was trying to be "delicate" [unusual for me since I tend to just speak out ;) ]. Yvonne was older so my thought is she isn't with us any longer. But I really don't know. Do have a photo of her & husband she sent me, but of course I can't find the folder I put it in.

I keep in touch with a few oldies also and 3 Moms of ITPers. Been around here since 1992 after coming out of my "remission" thanks to the tetanus booster - my son found the group for me, geeze I think that was the old-old discussion group.

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? for Sandi 5 years 9 months ago #45200

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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I remember the old old discussion group. SO different back then! Gary was the one who talked me off of the ledge when I was diagnosed. Kim and Audi too!

Cindy - Kim is doing okay. She just got back from a trip to Ireland. She is still very involved with the PDSA...participates in large fund raisers, is on the Scholarship Committee and is on the PDSA Board of Directors. She still has problems with Lupus but her counts have been good.
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? for Sandi 5 years 9 months ago #45204

  • CindyL
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Sorry about that Melinda. Just went in and changed my profile! duh!

It's been a while since bonbon's been here, so maybe you're right. Too bad. I remember how helpful she was.

I'm glad Kim is doing well!

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