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Saturday
- jeffrey71
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I had a CBC the other day and it was not, shall we say, sterling! Counts in the low 20's. My doc wants me to consider Rituxan or Spleenectomy. I pretty much flatly rejected both. I am not having any issues except low counts. I am running some again, working on my prednisone pounds. I feel fine.
Anyway, I am on the 2 week CBC routine again. If my counts drop below 20 I will have to consider something. I am not sure on the path.
Feel free to wade in here. Tough guy doesn't have a clue! LOL
Jeffrey
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- Winnifred
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- dru
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- I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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If you end up having to treat you might consider the low dose rituxan. Many of us have had long remissions from Rituxan.
Julia's suggestions might work though
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- jeffrey71
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Please don't encourage Julia. She is really not quite right... If you know what I mean! I will probably consider Rituxan should I have to do something. I can get it on the weekends and keep my employer from noticing.
What were the side effects that you experience?
Jeffrey
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- dru
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- I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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Oh and I did have a Kindle malfunction during one of the infusions, but a nurse was able to fix it
Between the weekly infusions i was fine, could go to work and did not have any effects.
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- jeffrey71
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dru wrote: I have had 3 rounds of rituxan. During the first infusion of each round i get bad chest pains, they slow down the infusion alot and ive had an ekg each time. It seems to be a bad stomach reaction, not a heart problem. During the next 3infusions each time I just breezed through. I do get some itchy throat and mouth but hydrocortisone helps. I get ranitadine, benedryl, hydrocortisone pretreatment.
Oh and I did have a Kindle malfunction during one of the infusions, but a nurse was able to fix it
Between the weekly infusions i was fine, could go to work and did not have any effects.
Thanks Dru!
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- Winnifred
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Jeffrey - You promised you'd keep it a secret that I wasn't quite right! I'm telling on you!
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- jeffrey71
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Winnifred wrote: I did the rituxan my first infusion I had a reaction but the next 3 were no big deal. Worse side effects were feeling run down for a day.
Jeffrey - You promised you'd keep it a secret that I wasn't quite right! I'm telling on you!
Julia,
You are a dear friend, but only a friend would tell you, you are NOT quite "right".
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- poseymint
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- Kim081
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I had Rituxin back in March of 2012. It was quite uneventful.
No side effects at all. Platelets have been fine ever since.
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- Vdeutsch85
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I just sent you an email!
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- DanC33
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- Jalpa
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I have been diagnosed with adult secondary ITP for a year now and my count kept dropping under 20k even after a severe blah prednisone treatment. I haven't had any bleeding symptoms in the past year. And I feel great. It's just everytime I get a CBC I get a panic value result for platelets. So reluctantly I agreed to Rituxan treatment. I recently had my 4 week Rituxan treatment which went very smoothly. It's been 5 weeks since my treatment ended. My platelets actually dropped to 16k during the treatment and 18k 4 weeks after the treatment. But, this week suddenly my count is above 100K. I am not sure if this is Rituxan's magic or just my platelets being in a good mood. So I'd say far I am having a good experience with Rituxan. Hope this helps you.
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- Winnifred
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