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TOPIC: Paleo

Paleo 7 years 9 months ago #29652

  • meredithjane
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That's great Sandi,
How are you managing the GF? Let me know if you need any recipes, or helpful hints. I still have several nice GF books at hand.
mj

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Paleo 7 years 9 months ago #29657

  • Sandi
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I look up recipes on the Internet, and use a lot of almond meal and almond flour which is actually quite good!

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Paleo 7 years 9 months ago #29659

  • eklein
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There was a cookie recipe in Sunday's Parade, GF - 1 cup sugar, 1 cup peanut butter, 1 egg, 1 tsp vanilla, crushed peanuts. Mix,sprinkle with peanuts, flatten on parchment paper, back 10-12 minutes at 325. Sounds great, but I forgot to buy pb today.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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Paleo 7 years 9 months ago #29665

  • Sandi
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No flour?

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Paleo 7 years 9 months ago #29693

  • nrcoach
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Just went to several sites with suggested recipes. Going to give it a try. Can't hurt. Can't get platelet count above 5000 with steroids, nplate, and rituxan. Might as well give this a try!

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Paleo 7 years 9 months ago #29694

  • eklein
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Correct Sandi no flour. I wouldn't think it would work, but it was a prize winner in Parade. Forgot to get pb again today.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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Paleo 7 years 9 months ago #29696

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Would you like a reminder text tomorrow? :woohoo:

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Paleo 7 years 9 months ago #29697

  • Sandi
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NR - read the book called "Paleo Solutions". It goes in depth about the digestive system and how it can affect overall health. I know there are a zillion books out there like it, but this is the most convincing stuff I've read yet and the author does a great job explaining and keeps it interesting.

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Paleo 7 years 9 months ago #29698

  • meredithjane
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Thought you might like these :P www.thehealthychef.com/2012/12/fruit-mince-pies/

Teresa Cutter is very popular - she has a cafe in Sydney & promotes healthy alternative food. Check out her site. ( I get a regular email recipe & my girls love trying them out too)
mj

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Paleo 7 years 8 months ago #30116

  • meredithjane
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Sandi, can we have an update? How's it all going for you now?
mj

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Paleo 7 years 8 months ago #30118

  • tofer
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All of this comes down to choices...I'm a carb addict i admit it. My name is julie ans i'm addicted to pasta & good bread...with cheese, there i said it. But i still have had to give up the flour, sugar & yes even cheese.

Your husbands pot of beans really should have been fine. Beans are protien and ham besides the salt shouldnt be a big deal. There is no gluten in those choices. Gluten in the french bread...corn bread is a better choice and goes better with the beans.. :) .

You Miss Sandi go at all things with your whole heart... Just try to avoid the major offenders...bread, pasta...then you don't feel so deprived.

<3

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Paleo 7 years 8 months ago #30119

  • Sandi
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The potatos were the problem, not the beans. No carbs allowed.

I failed at the first attempt. It was going great for weeks, then Thanksgiving came. I decided that I'd just wait until after the holidays to start again, and now I'm trying to get a start date. I was going to start yesterday, but a niece invited me out to lunch and the bread sticks were too tempting, so of course I said, "I'll start tomorrow".

I have to figure out how to use the new juicer then I'll be back in business.
The following user(s) said Thank You: tofer

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Paleo 7 years 8 months ago #30136

  • meredithjane
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Eating out, either at friend's homes or in restaurants, can be hard.
I found if I explained my situation people were usually pretty obliging. Otherwise I took my own GF substitutes.
mj

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Paleo 7 years 8 months ago #30146

  • Sandi
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Yeah, it's time to get serious again. I've had a very stressful family member invade my life lately so having that sort of routine isn't working right now.

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Paleo 7 years 8 months ago #30165

  • meredithjane
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I'm sorry to hear that, Sandi. It is VERY hard to 'let go', 'distance yourself', 'say no', 'put yourself first'. I am the worst offender, & believe it was detrimental to my health. I now find it a little easier, but only after a lot of soul searching. I still need regular reminders, in the form of inspirational quotes, family support & dear friends who understand. Not very many, but enough to encourage me.
Hang in there,
mj

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Paleo 7 years 6 months ago #31493

  • ania
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Hi Mj,

Greetings from Sydney. Loved that link to Teresa's recipes. I'm definitely going to check out her cafe.

Talking about diets, i've always been a heathy eater (even before the ITP times) but like Sandy felt a bit lost with so much often conflicting advice as for soy, wheat, meat sugar, gf - free diets. Ideally If i had someone to choose the recipes, do the shopping and cooking for me, I would be the healthiest person in Australia but the planning and thinking of what's good and what to substitute certain foods with is just so exhausting.

Sandy, it's very important that your family supports you in your diet and at least they don't tempt you with all the delicious food that you've decided to eliminate.

Good luck, keeping fingers crossed for those making some great changes to their eating habits!

Ania
Ania

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Paleo 7 years 5 months ago #31502

  • Sandi
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Oh, my husband tempts me all the time. He doesn't quite get lifestyle diet changes. He loves to cook and has his specialties, which we've all grown to love. He thinks it's okay to just cheat once in a while, like a person could do if losing weight.

I have started again and am eliminating nightshades. I have noticed some improvement. Next will be gluten, if I can gather up the willpower for that.

I actually made my own pickles the other day.

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Paleo 7 years 5 months ago #31507

  • Sandi
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Just thought of a new tactic. Instead of constantly taking foods away, I am going to add some. I am going to find some anti-inflammatory foods and eat more of those before I weed out the gluten. So far, I found onions on that list which I love!

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Paleo 7 years 5 months ago #31512

  • ania
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That's a great tactics. For every type of food I am trying to eliminate I will try and a find another healthy one to eat more of instead. I've been trying to eliminate lactose which gives me stomach cramps and bloating and so I've been enjoying more goat cheese which is really good! Lactose free milk tastes the same as normal one so that wasn't a big deal.

I recently bought a loaf of rice flour bread (gf) and it was really delicious when toasted and coated with some almond butter.

I am not making those changes for ITP as it doesn't affect my counts but it improves my digestion and general well being. It is amazing how our palates change and with time don't enjoy the foods that we've been avoiding that much anymore. But that happens when we stick to it for a longer while.

Good luck Sandy! Keep us posted.
Ania

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Another anecdotal Paleo story 6 years 2 months ago #42067

  • Sandi
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Paleo 6 years 2 months ago #42086

  • GhostRider
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Melinda wrote: To be honest I don't know much about this diet - but I am not a cave man, my body is different than their bodies were so why would I want to eat like one. There is Paleo, Atkins, South Beach, Blood Type diet etc.


Never a truer statement said :)

First off the Palaeolithic age lasted between 10,000 years and 1.4 million years. So to say Palaeolithic Man eat this is just ridiculous. W

Which Palaeolithic Episode are we talking about here?

Also you have difference classifications of humans if you will during this era, Homo Erectus, Homo Sapien, and Homo Heidelbergensis (there maybe be more but its been a while since I study this subject)

Biologically we are very different to those beings that walked the earth all those hundred's of thousand years ago.

Our knowledge on human evolution is limited. There are still many theories on how the human race evolved, many missing links that may never been found. So to say base your diet on what our ancestors eat between 10,000 years and 1.4 millions ago is just mind blowing.

Yes the diet is good because it is promoting the reduction of processed foods, but we all know that processed food is not the best.

The issue I have is that it this diet cuts out a lot of insoluble fibre but promoting eating larger amounts of meat which is not a good mix. You run the real risk of have serious bowel issues. You are also losing out on a lot of calcium as well which is also bad.

To me this is just another Atkins diet.

Saying all of this the diet is being recommended to people with Auto-immune disease so it is something I will look into more even thou I have just basically it is a crock of shit lol

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Paleo 6 years 2 months ago #42087

  • Sandi
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While I don't get into the caveman aspect of it and think the comparison is weird, I do find myself interested in this diet. I have never believed in fad diets. Ever. Anyone that knows me knows that I am a huge skeptic. I have also never been much of a meat eater, so I have been really limited with that. Not a juicy steak person.

The thing is, every single time I hear about someone becoming symptomless after following Paleo, I have to take a second look. I don't go looking for these claims....I just happen to catch them while the TV is on. I don't think these people are making this up. I've tried it myself and did see a LOT of improvement in physical symptoms. When you are losing function of hands, arms, legs, etc., you have several choices: Use Methotrexate or Imuran, or change your diet. I've tried both MTX and Imuran and all I got were horrible side effects. I continued to lose the use of my hands and muscles and live with debilitating pain. The Paleo diet did make a difference with all of that. I have nothing to gain by saying that.

As for fiber, it's just not true that you live without it while on the Paleo diet. www.crossfitworks.com/archives/352

If a person follows the diet carefully, they can also get enough calcium.
www.livingpaleo.com/get-all-the-calcium-you-need-without-dairy/

I'm not trying to push this on anyone. I have no idea if it would help someone with ITP or not. My problem is wide-spread inflammation and going Paleo for 3 months did cause improvement. I fell off the wagon though and there is no excuse for it other than the diet was very hard to follow and takes a lot of time and energy to do it right. I really need to get back to it and stick to it.

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Paleo 6 years 2 months ago #42088

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yah, GRider to go truly Paleo wouldn't you have to eat Wooly Mammoth?? that stuff is hard to find!

so i agree its gimmicky but- I need to change my eating habits!! i enjoy reading about paleo and loved the Fat Sick and Nearly Dead documentary- I bought the CD. I'm getting motivated and have changed a few things- haven't had fast food in a while (twice I bought other people fast food and didn't get anything for myself-wow) have started making more smoothies, eating more kale... BUT haven't eliminated my truly troublesome foods.

I've gained 30lbs while on prednisone. I was not skinny to begin with so am rather heavy now- its affecting my life overall and my freedom of movement. I'm not happy at this weight. thats my main reason for change. I just think my body is really imbalanced with the pred/drugs and overeating, lack of exercise. I complained to my hemo about gaining weight from prednisone. His response Do you exercise? Well,no. I feel too fat to exercise! thats a really BAD excuse! hahah but its the truth. I feel like I could hurt my joints. plus just lazy from all the bad food I'm sure. :laugh:

Sugar is my main problem food, bread/wheat second. I know I eat to manage anxiety- sugar and carbs give me an emotional lift. But its very short lived, then I have to eat more. Not a good solution- but when I get stressed I don't care, I just go for the sweets. That is the behavior I want to change.

I've been off sugar in the past and know the neediness goes away and I soon feel stronger without it and overall so much better. I think it takes a couple days- not that long! So I feel like I'm ready to take the leap-- No time like the present, right? For today I am planning to eat a fruit smoothie and salads, one with chicken. No sugar. Also will make some tomato soup with kale. no sugar.

I think for me its best to do one thing at a time. Won't commit to eliminating bread just yet but its on my radar. I don't care for beef or pork or lamb. I mention that because I can see myself trading ice cream for bacon! ANyway.. thanks all for sharing! -p

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Paleo 6 years 2 months ago #42090

  • Melinda
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I have an ITP friend who has lost a lot of weight over the past few months - she did it by counting calories [can't remember how many but she allowed herself I think 1200 calories a day] - and she started walking. Used these videos to start and when the weather got nice she started walking outside.

www.youtube.com/watch?v=df2gn6-w0dE

I am so proud of her - she now has made a life style change. No fad diet she did it all on her own and just cut back calories & ate [is eating] healthy and started exercising.


[Didn't know video would show up - hope that's ok]

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Paleo 6 years 2 months ago #42091

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Since the conversation is diet I want to mention this again - if you suspect you have any problems (in your gut) with apples, fruit juices or onions, please look up fructose malabsorption and the FODMAPs diet. This has made a HUGE difference for me in my overall health - the constant inflammation in my intestines was causing auto immune disease flares. Now that my gut is stable I am doing much much better (for the last 4+ years).

I also suspect that the paleo diet as well as the gluten free diet tends to correspond to low FODMAP eating, and the FODMAP reduction might be the source of benefits.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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Paleo 6 years 2 months ago #42093

  • Sandi
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Oh Melinda, I wish I wish! I have so been wanting to try every type of exercise there is but have a problem with everything! I swore that when spring came, I would start walking my neighborhood. Then I got bronchitis for 2 months and my (left) foot fractures were acting up a bit, so I couldn't. They never really did heal from a year and a half ago. If I'm careful and don't bend it, I do okay with a slight limp. Then I got the idea to start walking laps in my pool this summer. I started last week and was so excited. On the second day, I got into the pool and the water was cold. I stood on my tip toes (like that helps) and after that, the other foot started to hurt so bad I couldn't walk on it. I actually think I have another hairline crack in the right foot now. I stopped for a few days then went back at it. If I walk on the side of my foot, I can make the laps. Anyway, it's much easier than waking on land because of the weightlessness. I limp around the house all the time, certainly couldn't walk around the block. It makes me sick to realize how bad things are with my body and it's getting impossible to fight back. I guess this is what being disabled really is. There are so many things I can't do. I don't like it.

Paleo isn't just about weight loss anyway. That's only a perk. It's more about eliminating foods that cause problems in the body, sort of gluten-free plus some. It's mostly gluten and sugar that are eliminated. I don't see how that can be bad. It's just a lifestyle change, like being a vegetarian.

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Paleo 6 years 2 months ago #42102

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No matter what diet you try first off decide what you want out of it! Is it weight loss? Is it to be more healthy??


If you looking for weight loss do bother dieting just remember the way to loose is making sure your output is higher than your intake. There are web sites out there that tell you how many calories you burn with all types of activities as well as sitting and sleeping.

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Paleo 6 years 2 months ago #42107

  • Melinda
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Walking is only one form of exercise. I haven't been able to do any lately because of the worn out tendon in left foot and the arthritis in left thumb which really doesn't allow me to grasp [such as the machine handles at Curves] - and I'm feeling it :(

When I've gone to our rec center to use the track to walk I've seen seniors sitting on chairs in the gym doing their exercise class - I may look into that one.

Is there a reason you would be getting hairline fractures in your feet? I know about the antibiotic problem you had.

My friend went gluten free on her own - I had to buy a pair of reading glasses to read ingredients on things so when she came over I wouldn't give her anything with gluten in it. Also there are a lot of products out there now that are gluten free - and in the frozen section - of course they do cost more.

That didn't work for her - so she went soy free and that has really helped.

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Paleo 6 years 2 months ago #42112

  • Sandi
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I suspect the fractures are due of years of Prednisone. My osteo thinks so too. I've thought about chair and floor exercises and could probably find some that I might be able to do. I don't think it would help much with weight loss (I need to drop 30 pounds) but could help with strengthening muscles. I need that also! I've lost so much muscle over the years, also due to Prednisone and low Vitamin D.

I am going to try to keep doing laps in the pool when weather permits.

I don't like soy either. It can cause or exacerbate thyroid problems.

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Paleo 5 years 11 months ago #43974

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Ran across this thread and wanted to add my experience with the Primal diet, which is close to Paleo. I’ve been following it for about 10 weeks now.

My wife had been encouraging me to try primal for the health benefits, I was skeptical and resisted. However, I gained 5 pounds on a week-long family vacation so I figured why not. I didn't do any research on the diet, just ate what she told me I could. I want to stress, I wasn’t aware of the purported benefits of this diet outside of losing some weight.

After eating primal for only a week, the changes I felt were dramatic. I had a lot more energy, prior to eating this way I felt at any point in the day I could lay my head down and fall asleep. After, I was no longer drowsy during the day. My mind felt sharper, like a fog had been lifted. I felt like a new person and I was losing weight quickly.

It was at this point I started doing research and found these were some of the benefits others have seen in this life style. I also found some research that shows links between intolerance for grains and some autoimmune diseases.

Currently I’m on a high dosage of pred, so I don’t feel as good as I did, but I’m convinced I feel much better than I would without the primal life style. Also, while the weight loss has slowed, I’ve continued to slowly lose about a pound a week.

I’ve gone from a BMI of 28.5 (considered overweight) to a BMI of 24.5 (considered normal). This is without starving myself, or even being hungry all the time. Really the weight just falls off it’s crazy.

The web site I’ve used, which is awesome, is below. This site has been around for years and years, it’s filled with great research, personal stories and the best is a 21 day complete plan if you want to get started. It makes it easy to do and I’d encourage anyone toying with the idea to try it.

www.marksdailyapple.com

I’ll finish by saying, the diet isn’t as hard to follow as it first seems. I swore I couldn’t go without bread, but it’s been very easy. I wasn’t factoring in how great I would feel which makes the sacrifice seem very small compared to the benefits. So don’t let that stop you from trying it, just 3 weeks at least to see how you feel.

Mike

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