Thought I'd share one of the (very) few positive things that ITP has done for me ...
Almost exactly 3 years ago, I met someone called Neil at the local indoor climbing wall here in Glasgow, part of a group of us who climbed together on an informal basis. A few months later, I was diagnosed with ITP, and obviously my doctors gave me strict instructions not to do anything dangerous, so climbing was obviously out! So, I texted my climbing buddies to tell them I'd be out of circulation for a while, and they all replied with commiserations and wishes for a speedy return to the other end of a rope
Neil, however, kept in touch much more regularly, and was immensely supportive - during my first month of prednisolone (75mg per day) when I had severe insomnia, he once came round at 3 a.m. armed with his sister's wedding DVD and the DVD of a skydive he'd done, thinking that watching these would put me to sleep in no time! Needless to say, I watched them both to the end while he dozed ...
He was an incredible friend to me as I was tapering off the pred, and fondly remembers a night in a pub where I had one small beer and reached new levels of euphoric tangential conversation, accompanied by exaggerated arm gestures that entertained the whole pub, unbeknownst to me! Anyway, to cut a long story short, we started going out together in October 2009, and managed to get through the first few tentative month of a new relationship despite the joint pain and hair loss I had from the prednisolone. I then had 18 months remission, during which time we moved in to a new house together (September 2010), so he then got to witness my second course of prednisolone and the associated mood swings and side effects up close and personal when I relapsed in April last year. Again, the levels of support and patience he's shown have been unstinting and unconditional - he talks about "our platelet count" and "our treatment" without realising he's doing it, maybe because he's only really got to know me since I got ITP and it's part of me. Well, part of us
So, given a choice between option 1 (no ITP and no Neil) or option 2 (ITP and Neil) - well, no decision to be made, there, option 2 every time!
I said at the start of this that there were a few positives (plural) and I think that apart from bringing me and Neil together, I've got a whole new perspective on life, and an increased awareness on the support people give and receive. This site has been a big part of that, even though I only discovered it a couple of months ago so I wanted to share some positivity with everyone on here
Thanks to everyone for sharing their experiences and thoughts, it's like having friends who instantly "get" each other