How Your Donation Makes a Difference

How Your Donation Makes a Difference

Support Groups

  • 43 local support groups
 (including US, Canada & New Zealand)
  • 1 Teleconference Support Group for Parents of Children with ITP
  • 1 Teleconference Support Group for Canadian Patients and Families

Website

  • 200+ pages of FREE information
  • 50,000 unique visits per month;
  • 70,000+ total visits per month from 130 countries
  • 3 million hits per month

Brochures & Articles (FREE)

  • 29 booklets (including 12 translations) & numerous articles

Publications

  • 2 quarterly newsletters & FREE monthly
e-newsletter
  • 80,000 copies of “Guide to ITP” distributed to medical institutions and hematology offices

Discussion Group & Chat Room

  • 100,000+ messages from 7,600+ members posted
to the PDSA.org forum

Social Networking

  • 10,000+ Facebook, Twitter & Instagram followers
  • 70,900+ YouTube & Vimeo videos viewed

Name Exchange Program

  • 900 participants

Patient Support & Referral Service

  • 5,000 US and international calls/emails per year

PDSA College Scholarship

  • 40 Audi Gerstein College Scholarship recipients

Outreach to Children and Teens with ITP

  •  5 annual Kids Kamps serving 70 families
  • 120 teens participating in the “For Teens Only”
  • 168 “Poke-R-ClubSM for ITP Kids” kits and prizes distributed
  • 300 eduational school packets distributed to elementary schools

Annual ITP Conference

  • 16 annual patient-focused meetings
  • 3,500 attendees
  • $95,000 in conference scholarships distributed to patients in need

National Walk/Run

  • 22 locations in the US and Canada

ITP Awareness Month & Sport Purple for Platelets Day

  • 7 international events
  • 30+ newspaper articles including stories in the UK and India
  • 28 countries participated in Global ITP Awareness Week

ITP Day on the Hill

  • 27 participants met with 20 congressional staff members from 10 states

Research & Advocacy

  • 342 patients enrolled in newly established ITP Natural History Study Registry
  • 8 member Patient Advisory Panel aligned & research guidelines established
  • 6 collaborative research studies with PDSA medical advisors
  • 13 partnerships with national & international allied patient advocacy groups


PDSA receives NO federal funding. Programs are made possible through private donations, fundraising efforts, memberships, and grants through our corporate sponsors.

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Josh Phegley, Oakland A's

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