ITP Conference 2023 - Agenda


FRIDAY, JULY 21

8:00 - 9:00 AM Hike & Seek
3:00 — 6:00 PM Registration/Exhibits Open
5:00 — 5:15 PM Welcome
5:15 — 6:30 PM ITP Through the Ages: A historical look at what we have learned and what we still don’t know
6:30 — 7:15 PM Patient Mixer
7:15 — 8:45 PM Inquire & Inspire: patients ask the experts and share personal journeys (small group sessions)
• Patients & Caregivers
• Canadian Patients & Caregivers
• For Teens Only


SATURDAY, JULY 22

8:00 — 9:00 AM Registration
Continental Breakfast
Exhibits Open
9:00 — 10:15 AM How do I know I have ITP and what does that mean?
• Establishing the diagnosis of ITP
• When, why, and how you should ask for a second opinion
• The role of the platelet count in ITP management
• What if I don’t have ITP?
10:15 — 10:30 AM Break
10:30 — 11:30 AM Inquire & Inspire: patients ask the experts and share personal journeys (small group sessions)
• Rare bleeding disorders during adolescence, pregnancy, and menopause – for women only
• ITP in Seniors
• Teen session, for parents of teens (transitioning from high school to college, pediatric hematologist to adult hematologist
• For Men Only
11:30 AM — 1:00 PM The impact of ITP on Quality of Life
• Bleeding and Fatigue
• Travel and Sports
• Cognitive function in ITP
• In Sickness and In Health: How Chronic Medical Illness and Rare Diagnoses Impact Families and Couples
1:00 — 2:00 PM Lunch Break with PDSA Medical Advisors
2:00 — 3:00 PM Treatment strategies and emerging therapies for ITP
What is a clinical trial and how does it work?
3:00 — 3:15 PM Break
3:15 — 4:15 PM Concurrent Sessions:
• ITP in Adults: Q & A
• An Update on Pediatric ITP: differentiating primary ITP, IPD, and PID
4:15 — 4:30 PM Break
4:30 — 5:15 PM Shared Decision Making: making the right choices in ITP management (to include fireside chat with two patients)
5:15 — 5:30 PM Announcements
6:30 — 7:30 PM Dinner Program
8:00 — 10:30 PM Family Fun Event - Cruise on Chicago’s First Lady with an architectural tour on the river and fireworks


SUNDAY, JULY 23

9:00 — 10:30 AM Continental Breakfast
Support Group Facilitators’ Breakfast (pre-registration requested)
10:30 — 11:30 AM Keynote Speaker: The Mind Body Connection: Medical Trauma, Rare Disease, and Strategies for Resilience
11:30 — 11:45 AM Break
11:45 AM — 12:45 PM Living with ITP: Patients share their stories
12:45 — 1:00 PM Closing Remarks

*Agenda and speakers subject to change
**A separate track for teens and young adults will run Friday and Saturday
***Kids Kamp will run during all conference sessions




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