FRIDAY, JULY 21
8:00 - 9:00 AM | Hike & Seek |
3:00 — 6:00 PM | Registration/Exhibits Open |
5:00 — 5:15 PM | Welcome |
5:15 — 6:30 PM | ITP Through the Ages: A historical look at what we have learned and what we still don’t know |
6:30 — 7:15 PM | Patient Mixer |
7:15 — 8:45 PM | Inquire & Inspire: patients ask the experts and share personal journeys (small group sessions) • Patients & Caregivers • Canadian Patients & Caregivers • For Teens Only |
SATURDAY, JULY 22
8:00 — 9:00 AM | Registration Continental Breakfast Exhibits Open |
9:00 — 10:15 AM | How do I know I have ITP and what does that mean? • Establishing the diagnosis of ITP • When, why, and how you should ask for a second opinion • The role of the platelet count in ITP management • What if I don’t have ITP? |
10:15 — 10:30 AM | Break |
10:30 — 11:30 AM | Inquire & Inspire: patients ask the experts and share personal journeys (small group sessions) • Rare bleeding disorders during adolescence, pregnancy, and menopause – for women only • ITP in Seniors • Teen session, for parents of teens (transitioning from high school to college, pediatric hematologist to adult hematologist • For Men Only |
11:30 AM — 1:00 PM | The impact of ITP on Quality of Life • Bleeding and Fatigue • Travel and Sports • Cognitive function in ITP • In Sickness and In Health: How Chronic Medical Illness and Rare Diagnoses Impact Families and Couples |
1:00 — 2:00 PM | Lunch Break with PDSA Medical Advisors |
2:00 — 3:00 PM | Treatment strategies and emerging therapies for ITP What is a clinical trial and how does it work? |
3:00 — 3:15 PM | Break |
3:15 — 4:15 PM | Concurrent Sessions: • ITP in Adults: Q & A • An Update on Pediatric ITP: differentiating primary ITP, IPD, and PID |
4:15 — 4:30 PM | Break |
4:30 — 5:15 PM | Shared Decision Making: making the right choices in ITP management (to include fireside chat with two patients) |
5:15 — 5:30 PM | Announcements |
6:30 — 7:30 PM | Dinner Program |
8:00 — 10:30 PM | Family Fun Event - Cruise on Chicago’s First Lady with an architectural tour on the river and fireworks |
SUNDAY, JULY 23
9:00 — 10:30 AM | Continental Breakfast Support Group Facilitators’ Breakfast (pre-registration requested) |
10:30 — 11:30 AM | Keynote Speaker: The Mind Body Connection: Medical Trauma, Rare Disease, and Strategies for Resilience |
11:30 — 11:45 AM | Break |
11:45 AM — 12:45 PM | Living with ITP: Patients share their stories |
12:45 — 1:00 PM | Closing Remarks |
*Agenda and speakers subject to change
**A separate track for teens and young adults will run Friday and Saturday
***Kids Kamp will run during all conference sessions