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TOPIC: PaPaya LEAF EXTRACT as a Treatment for ITP!

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #25968

  • frankie34
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hi Debb As far as I know, I didnot hear of anyone on this website , who had a reaction, from the papaya leaf reatment, I can only vouch for myself, I have been using it since 5/20/2012.Some people have been using it for a year, with no side effects. I guess the only way to find out, is to give it a try. take care godbless you frankie
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #25969

  • frankie34
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Hi ladyjo , there was a post by rob, on how he got started on papaya, after recieving numerous , treatments for itp. A nurse, told him about a leukemia patient, who could not recieve additional treatments , because the platelets were low, she used the papaya, and the platelets increased. I wish you luck , I guess the only way to find out, is to try it,Hopefulley it will help. We will pray you have success, take care and god bless you frankie
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #25987

  • Lady Elly
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Hi Frankie 34:

I took papaya leaf extract faithfully for 6.5 months. My platelets are still at 6k. My platelets did go up to 22k in Jan. 2012 for a brief few days and dropped down to 6k. Really had hopes it would work. From what I've read about papaya leaf extract, it needs to be fresh leaves every 3 days. We can't get it fresh off trees in U.S.

Don't know of anyone except 1 person who has said it worked for them.

Keep us informed to your progress with the papaya extract and best wishes.
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #25988

how long were you on the Papaya leef extract before you noticed an increase in your platelet counts? i have been on steroids since january 2012 (when i fist got diagnosed) and i drop to 10K every time i try to tamper off them. i would be willing to try anything more natural that has even a slight chance of working!
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #25999

  • Lady Elly
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ddinap:

I started on papaya leaf extract on Nov. 29, 2011. My platelets were <10k. I took it faithfully every morning on empty stomach - 2 Tbsp. no water and had nothing to eat for 30 min. to 1 hour later.

12/15/11 CBC 8k
12/21/11 CBC 13k
12/28/11 CBC 14k
01/04/12 CBC 15k
01/11/12 CBC 22k
01/18/12 CBC <10k
01/20/12 CBC 7k

I continued to take the papaya leaf extract for 6.5 months. Recently I quit since my platelet count was not going up.

After 1/20/12, my platelets have continued to stay between 6k - 10k.

I have kept a spreadsheet of all my platelet counts and dates since I was first diagnoised with I.T.P. on May 25, 2010, which was due to a vaccine.

Good luck if you decide to try papaya leaf extract.
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #26002

  • KittieG
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Frankie:

The only reason you would need to do a CBC without the EDTA is if they were getting results that showed clumping of the platelets, and even if that happens, it can be for reasons other than the lining of the tube (and it also can be because of the EDTA treated tube).

So I would talk w your hemo and ask if they've ever seen any signs of clumping on the slide. If they say no and you still have a pang of doubt, ask if they can do two tests at the same time - one w the EDTA lined tube (usually purple cap), and one without (usually blue cap).

In all honesty, we pay so much #!@ money to these doctors, I think if you request this your wished should be respected, regardless. it's no extra issue for them.

At the end of the day, they probably would have told you if they've seen clumping. But it never hurts to ask.
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #26003

  • KittieG
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And finally an update for everyone: short story, I still have ITP. But also have clumping sometimes, so we are going to continue using two tubes for the next few CBCs. Here's the stats:

6/15: got numbers done - 60k and they saw the clumping (and I wrote the long post about this).
6/29: new test, two vials, one coated w edta one without. 31k in one and 30k in other.

So now we know these things:

1. EDTA is probably not an issue for me.
2. My platelets sometimes clump if sitting for a while (the new lab sends them out, rather than on site testing).
3. The papaya is not helping much, but maybe helping a little?
4. I still have ITP, and my numbers are dropping, but still in a decent range.

The numbers have gone down pretty significantly over the last few months, but staying above 30k with no medication besides papaya leaf is good enough for me. My current dr is fine with not treating at these numbers, and is fine with me taking the papaya leaf as an experiment. So the experiment continues!

I never thought papaya would cure it, but if it keeps me from having to take steroids/winrho/rituxan I'm happy enough with that.

It will be great to talk with experts at the conference in a couple of weeks about these things!

I hope to see some of you there!
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #26010

  • frankie34
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hi kittieg Good advise, you make sense, will do what you suggest , the next time, I am schedule for a cbc. You mentioned 30k for platelets, that is exactly what my doctor said, I will continue to take the extract, and have added the papaya tea, perhaps, it may help. If it doesn,t I will handle. again thank you, take care, god bless you . frankie
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #26011

  • frankie34
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Hi Lady Elly, I am trying to take the papaya tea, see if this helps, if not will try your method. thank you for your information. take care, and god bless you frankie
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #26031

  • Lady Elly
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Frankie:

Last check my platelets were 6k. Today they were 19k! Wow, I am so excited.

I have been off all medications for nearly 8 months. I believe what may have helped them to go up is taking B12 injections every 2 weeks.
My B12 levels were bottomed out last Nov. 2011.

B12 injections and CBC:
11/29/11 - B12 - <10k
12/13/11 - B12
12/21/11 - 13k
12/28/11 - B12 - 14k
1/4/12 15k
1/11/12 - B12 - 22k


As of 1/11/12, I quit taking the B12 injections every other week as I was thinking it was the papaya leaf extract bringing platelet count up. Of course, platelets dropped drastically the following weeks.

Started taking B12 injections again every 2 weeks on 5/29/12 and platelets were 6k.

Had platelets checked on 5/29/12 at 6k and did not check again until today, 7/9/12 and they were 19k.

Will continue the B12 injection every two weeks. Will have platelets checked 8/24/12. It may be possible that the B12 injection is helping to raise platelets.

Good luck on the papaya tea.
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #26040

  • frankie34
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Hi Lady Elly I AM GLad FOR YOU, AND HOPE YOU HAVE CONTINUED SUCCESS, WITH THE B12 AGAIN THANK YOU FOR YOUR POST. KEEP US INFORmed. TAKE CARE AND GOD BLESS YOU FRANKIE
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #26074

  • KittieG
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Elly:

What is the dose of the b12? Does it have to be an injection (is it really high)?
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #26083

  • Lady Elly
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I do not know the B12 doseage. It is an injection every two weeks. My vitamin levels were checked and the B12 was extremely low. I had been on high doses of Folic Acid which apparently depleted the B12 levels.

Perhaps the B12 did work and will continue working with raising platelets, we'll see. Even tho they are still low, they went up from 6k to 19k which was great!

Will keep you posted.
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #26088

  • KittieG
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19k is in a category I like to call "good enough"! Especially when the last number was 6k!
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #26113

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hi Went to the lab for blood work because the sample they took on 7/3/12 for copper didnot register, Today 7/11/12, I had a cbc and copper test, the cbc test platelets went from 42k to 47k in 8 days, I was happy about the increase, the only difference was i started to increase my papaya leaf tea, to twice a day. along with b12 tablets and copper. I asked the lab tech, if she had a vial without edta, she said no this is what they use , by color code. I WILL ask the doctor at my next appointment 8/7/12, if they can use a vial without edta and perhaps one with edta and do a comparison, thank you . and god bless you all frankie
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #26163

Kittie--I think you have done really well for being off of meds!! I didn't read your posting regarding the "clumping", but I will look for it later on.

Just wanted to mention that look forward to meeting you at the conference. I plan to attend this year (we were going to Colorado any way).

If my platelets didn't always "crash", I would do exactly as you are doing. I don't really feel that bad when my platelets are low.

Hope to see more of you at the conference.
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #26205

  • Ranjit73
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Hi I am newly diagnosed with itp 3 weeks back.My counts has been less than 10 n I was given plt transfusion .it went up to 46 then drop to 25 ...the dr have given me option on watchful waiting or can start treatment...I have read so much on papaya leaf extract .As for today I have not started any treatment except for taking supplement...and taking papaya leaf juice( usually I wash the leafs and extract them)....any advice ....
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #26210

  • eklein
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My advice is to be sure and tell your doctor what you are taking, because that is a type of treatment and the doctor should know about it.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 6/20/2014: 222K
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #26213

  • Ann
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My advice is to find a haematologist who doesn't immediately resort to platelet transfusions which are not indicated for the treatment of ITP.
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #26216

Ranjit,
If possible, try to do as much research as possible while you are waiting to start a treatment plan. Do you have a lot of symptoms? There are things you can do (including diet) to help control your symptoms. I would try to work on the reseach and diet until you decide what type of treatment you want to try.
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #26223

  • Ranjit73
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Dear Marie...
The haematologist did not give plt...it was when I got admitted 3 weeks back with plt less then 10 they medical dr gave me a short of transfusion n it went up to 46 but after that it drop to 25 that's where I was refered to haematologist n then they did a series of blood test which confirmed I had itp....I m 38 so the haematologist thinks I can op out for watchful waiting...at the time of admission I had 3 big bbruises and red spot which is gone by now...I m just on vit c supp..papaya leaf extract...n fruits....diet...it has been 2 weeks I m on weekly plt check count it has remain 26 .n 25.... I m worried n confuse whether I should also take the offer of starting steroids....any advice
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #26225

  • Ann
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I wouldn't take steroids at that count. Sometimes, or even often, we see people take steroids and when they finish them they end up with an even lower count than when they started. It's more usual nowadays to worry about the symptoms rather than the numbers. If you bleed at lower counts then of course you will need to treat.
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #26233

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I was told many things about ITP ....as it is a new diagnosis to me....the dr s did tell me I can bleed intra cranial haemorrhage....go into coma....etc with low platlets.....this has been worrying me as for today my count has been 25 ...without any treatment...every week is like I'm sitting for some examination ...anxious....anyone did the same option as I did in this group....at least this will ease me a little:(
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #26249

Ranjit,
I know that the doctors do scare you--but a count of 25 with hardly no symptoms isn't that bad. I agree with Ann; I couldn't take any steriods unless my platelets started to fall. My platelets were all the way to 1 and I still made the doctors take it slow with me. I treated with Decadron pulses becauses my platelets kept falling to 1. Now they have been stable. If my platelets stayed at 25, I, myself, wouldn't let them treat me. This is just my own personal opinion.
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #26361

  • jaynemarie
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I have been taking this for 6 weeks with no luck. I understand with these remedies this just might not fix my underlying problem. It would be useful to know how long you took the extract before seeing results.? Thank you.
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #26371

  • Ranjit73
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:cheer: Finally counts are up today not much but improve slightly from 25 to 32 in 3 weeks....thanks to the papaya leaf extract
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #26513

  • Lady Elly
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Hi:

Went to doctor to have vitamins levels checked. As I reported recently my cbc on May 26 was 6k, and July 9 was 19k, and yesterday, July 25 they were 26k! Wow, was I ever happy. They have not been in upper 20's since Oct. 2011 which was over 10.5 months.

I am still having the B12 injection every 2 weeks. However, I received my B12 levels today and they were a little high. I am not sure if there are any side effects from high B12 levels. I did just have the injection prior to the blood test for the B12 levels. It might not be completely accurate.

Anyway, I'm thrilled that my cbc count is up to 26k! I still have some bruising and light peteachi on legs.
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #26515

Lady Elly & Ranjit,
I'm happy for both of you! I'm glad that something is helping to bring up your platelets.
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #26517

  • frankie34
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hi tanjit73 I am happy for you,looks like the extract is working.. take care .frankie34
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Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 2 years 3 months ago #26518

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HI Lady Elly. happy for you, I believe you are on the correct path. You have done your research and have helped me with your posts,and research. take care. frankie34
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